Posted , 8 users are following.
I've had vulvodynia diagnosed and inactive lichen sclerosus. I have tried all steroids, creams lotions and potions. I cannot sit for any more than 15 minutes at a time. I can have great discomfort of rawness and stinging even when walking! I use coconut oil to moisturise and hydromol to shower. All medications tried have not worked and have had horrendous side effects . I have been referred to a chronic pain clinic who has recommended a epidural type nerve block. Has anyone had this or similar? Has anyone any other advice?
0 likes, 12 replies
samantha1970 alison54950
Posted
i was diagnosed with vulvodynia alongside my LS. I've found mine appears to be worse when I eat dairy foods and have excess sugar. I've drastically cut back on dairy and try and eat minimal sugar and the symptoms have reduced.
Have you tried looking at your diet?
Samantha
Snowlily alison54950
Posted
I was diagnosed with ls and vulvodynia at the same time, at first my doctor just gave me dermovate treatment but the pain was just too much so I kept going back to my doctor and then she gave me a course of pills (unfortunately I can't remember the name) to block the nerve endings and in a sense kill them off, and it actually worked!!! I have been having some problems lately with the pain recurring so I'm thinking it was just temporary or new nerve endings have made an appearance but those few months where I had no pain were complete bliss. I hope they can help you find a solution to the pain relief you are looking for.
gill77081 alison54950
Posted
glyn186 alison54950
Posted
Its awful I know I have been using Organic tea tree antiseptic ointment for some time now and works for me plus after showering I use vaseline and use it each time I have a wee. It helps to stop the acid burning of your urine and keeps you moisturised too . It may not work for you but give it a try the tea tree gives a cooling effect like you've sat on ice and it helps to heal. Best of luck xx
Guppy007 alison54950
Posted
catts123 alison54950
Posted
I also suffer with vulvodynia and ive been suffering with burning for the last 12 months and its really affecting my everyday life.im currently takin lyrica and amitriptyline and its not helping.im waiting to see a pain specialist and im really hoping he can help me.does the pain specialist you saw think that the epidural nerve block will help?
alison54950 catts123
Posted
catts123 alison54950
Posted
I havent even thought about the withdrawels is it really bad? Are u considering having the nerve block done? I started early menopause and this is when it all started for me.i totally understand when you say its neverending it takes over your life
alison54950 catts123
Posted
catts123 alison54950
Posted
alison54950 catts123
Posted
catts123 alison54950
Posted
Join this discussion or start a new one?
New discussion Reply