Nerve block

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I've had vulvodynia diagnosed and inactive lichen sclerosus. I have tried all steroids, creams lotions and potions. I cannot sit for any more than 15 minutes at a time. I can have great discomfort of rawness and stinging even when walking! I use coconut oil to moisturise and hydromol to shower. All medications tried have not worked and have had horrendous side effects . I have been referred to a chronic pain clinic who has recommended a epidural type nerve block. Has anyone had this or similar? Has anyone any other advice?

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12 Replies

  • Posted

    Hi Alison,

    i was diagnosed with vulvodynia alongside my LS. I've found mine appears to be worse when I eat dairy foods and have excess sugar. I've drastically cut back on dairy and try and eat minimal sugar and the symptoms have reduced. 

    Have you tried looking at your diet?

    Samantha

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  • Posted

    Hello

    I was diagnosed with ls and vulvodynia at the same time, at first my doctor just gave me dermovate treatment but the pain was just too much so I kept going back to my doctor and then she gave me a course of pills (unfortunately I can't remember the name) to block the nerve endings and in a sense kill them off, and it actually worked!!! I have been having some problems lately with the pain recurring so I'm thinking it was just temporary or new nerve endings have made an appearance but those few months where I had no pain were complete bliss. I hope they can help you find a solution to the pain relief you are looking for.

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  • Posted

    I had pain and soreness and a feeling like pins were sticking into me while walking for about 2 years following a botched procedure for psoriasis (skin kept splitting) which has now been diagnosed as lichen planus.  The doctor prescribed Lidocaine ointment which blocks the nerve endings so you dobn't feel pain, but it's not a permanent solution.  I find moisturisers e.g. Vaseline which coats the area helpful, and keeping the area dry with pads with no bleach, also washing down there only with water, then coating the area again.  I did not find coconut oil thick enough to form a barrier.   I only use steroid cream if the area is particularly sore.  
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  • Posted

    Hi Alison

    Its awful I know I have been using Organic tea tree antiseptic ointment for some time now and works for me plus after showering I use vaseline and use it each time I have a wee. It helps to stop the acid burning of your urine and keeps you moisturised too . It may not work for you but give it a try the tea tree gives a cooling effect like you've sat on ice and it helps to heal. Best of luck xx

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  • Posted

    Hi alison

    I also suffer with vulvodynia and ive been suffering with burning for the last 12 months and its really affecting my everyday life.im currently takin lyrica and amitriptyline and its not helping.im waiting to see a pain specialist and im really hoping he can help me.does the pain specialist you saw think that the epidural nerve block will help?

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    • Posted

      Hi, he has said he has performed this with some success so it's worth a try, the downside will be it won't be long lasting . I too have been on lyrica, waste of time. Side effects not great, withdrawal even worse, so take it easy! When you stop them. I cannot link my discomfort to diet or anything else. I can only sit for short periods of time. Feels never ending.😩
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    • Posted

      Hi alison

      I havent even thought about the withdrawels is it really bad? Are u considering having the nerve block done? I started early menopause and this is when it all started for me.i totally understand when you say its neverending it takes over your life sad

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    • Posted

      I'm just waiting to hear when I have appointment for day surgery. Withdrawal was bad, I was so ill but I didn't do gradually and should have. I was only on them for 3 weeks.
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    • Posted

      Ive been taking lyrica for about 3 months now i dread the thought of the withdrawels.im hoping the pain specialist will be able to help i feel ive exhausted every avenue avaliable at this stage.i hope you wont be waiting much longer and that you get relief from it even if its not long term you never know it might not reoccur with the help of god...xx
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