Nerve block

Hi Alison,

i was diagnosed with vulvodynia alongside my LS. I've found mine appears to be worse when I eat dairy foods and have excess sugar. I've drastically cut back on dairy and try and eat minimal sugar and the symptoms have reduced. 

Have you tried looking at your diet?

Samantha

Hello

I was diagnosed with ls and vulvodynia at the same time, at first my doctor just gave me dermovate treatment but the pain was just too much so I kept going back to my doctor and then she gave me a course of pills (unfortunately I can't remember the name) to block the nerve endings and in a sense kill them off, and it actually worked!!! I have been having some problems lately with the pain recurring so I'm thinking it was just temporary or new nerve endings have made an appearance but those few months where I had no pain were complete bliss. I hope they can help you find a solution to the pain relief you are looking for.

I had pain and soreness and a feeling like pins were sticking into me while walking for about 2 years following a botched procedure for psoriasis (skin kept splitting) which has now been diagnosed as lichen planus.  The doctor prescribed Lidocaine ointment which blocks the nerve endings so you dobn't feel pain, but it's not a permanent solution.  I find moisturisers e.g. Vaseline which coats the area helpful, and keeping the area dry with pads with no bleach, also washing down there only with water, then coating the area again.  I did not find coconut oil thick enough to form a barrier.   I only use steroid cream if the area is particularly sore.  

Hi Alison

Its awful I know I have been using Organic tea tree antiseptic ointment for some time now and works for me plus after showering I use vaseline and use it each time I have a wee. It helps to stop the acid burning of your urine and keeps you moisturised too . It may not work for you but give it a try the tea tree gives a cooling effect like you've sat on ice and it helps to heal. Best of luck xx

Alison, what do you mean by inactive lichen sclerosus?  What are your symptoms? What medications have you tried?  Have you changed your diet at all.

Hi alison

I also suffer with vulvodynia and ive been suffering with burning for the last 12 months and its really affecting my everyday life.im currently takin lyrica and amitriptyline and its not helping.im waiting to see a pain specialist and im really hoping he can help me.does the pain specialist you saw think that the epidural nerve block will help?