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Nerve pain for past 2yrs

Posted , 4 users are following.

maura47257
maura47257

Hi I'm new to forum but on reading some posts,very familiar type symptoms.I suffer nerve pain in both feet and legs,right foot feeling so heavy when sitting.On gabapentin but not really helping ease pain .So difficult to walk/stand and in constant pain .Biggest worry...does it get so bad,that end up totally inmobile.thanks in advance

0 likes, 5 replies

5 Replies

  • Angel91
    Angel91 maura47257

    Posted

    Hello, do you have an official diagnosis, or are they just calling it nerve pain? It is impossible to say just how bad your pain is likely to get, but it is relatively rare to end up completely immobile, unless you have some sort of degenerative condition.

    Have you considered going to the Pain Clinic, and physiotherapy? Both may help you with the pain you are feeling. Also, for most people keeping as active as possible will help prevent the pain getting worse.

    • maura47257
      maura47257 Angel91

      Posted

      Thank you for your reply.Initially I was diagnosed with plantar fasciitis and treated with strict exercise regime and got orthotics from podiatrist.Condition became much worse.Told tgen I didnt have p.f.Eventually got lumbar mri scan which showed bulging disc compressing nerve..Surgeon felt that could not account for severity of pain in both feet and legs.Then advised by another orthopaedic surgeon I had nerve damage.Just such a horrific condition and and no one I think can appreciate pain unless they experience it.I can so relate to those in forum rather than being so isolated.Again,my experience,Doctors dont really want to know..Thank you.
    • maura47257
      maura47257

      Posted

      Sorry Angel,to answer your questin..yeah only started physio and I must adk Dr. to refer me to pain clinic.I'm on gabapentin 309 mg twice daily but feel I need more pain relief .thanks again for your reply

  • Tricha355
    Tricha355 maura47257

    Posted

    Hi, well I’m 18 months down the road from my massive harmotona. Have peripheral neuropathy has not changed at all. So sadly looks like it is permanent. Doctors are saying well it may improve. But I have already leaned to live with it. Happily it’s controlled by medication. But there are still good and bad days as I have osteoarthritis and spondylitis as well. You learn to adjust and change your lifestyle. Most importantly I think you must keep moving. There have been times that I have just cried after my excercise class but I know that it does help me. Hope this helps. 
  • pippa58442
    pippa58442 maura47257

    Posted

    If gabapentin is not helping, you are better coming off it and asking for a different course of treatment that is less toxic.  I have neuralgia in both hands and arms as a result of a fall and a medical error.  I find natural solutions work better for me such as sunlight which completely gets rid of the symptoms.  Bad weather aggravates it.

    My nerves in my arms and hands short circuit and on one occasion I lost feeling and power in my hand for a few minutes.  If I hold things in my hands for a long period of time, the short circuiting starts.

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