Nerve stimulator.

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Slender stimulator we put in this past Wednesday so I've had it for 5 days now. Yesterday I ended up in the emergency room I ended up in the emergency room because I had muscle spasms in my right leg so severe that I could not walk and had to be put in a wheelchair to get into the emergency Room. Eventually the spasms stopped after about 6 hours and a shot of morphine. But even in the emergency room the doctors do not seem to know how to treat a paint with chronic reflex pain syndrome. I'm now leaving my primary doctors office to go see my surgeon who put in. The nerve stimulator to find out why I had such bad spasm. Has anyone else experienced these type of things with a nerve stimulator

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  • Posted

    Morning,i dont know if this is similar but 2 years ago i had spinal stim put in for damaged nerves in both legs ,well i couldnt use it for nearly 18 months as every time i switched it on and turned it up my muscles in both sides of my back spasmed and i recieved a severe stinging pain,i was told it wasnt a problen with the machine but they would remove it if i wanted,i went away and my wife persuaded me to turn the machine on and then lower it untill i felt nothing from it at all but it was still on,i did this for 2 minths and gradually turned it up and i recieve no spasms or stinging ,i still occasionally have the muscle hurting but no spasms,the machine is now doing its job,i realise that your pain sounds awful and if this helped I'm glad if not at least i had a chat 😀

    Hope you find some answers,enjoy your day.

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    • Posted

      That stinging pain and spasms is exactly what im experiencing. I have post op this friday and i hope they have a answer for me .i tried turning it off but i still get the stinging pain.i can feel the lead thats causing it thru my skin.thank you for your response ill turn it down low and try that for awhile.maybe i just need to be patient and waite to heal since i just had it put in 6 days ago.im in alot of pain..i feel for all going through pain.this group helps so much
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  • Posted

    Well it's been a month and I'm suffering something awful from the surgery.. Yes I have some relief in my hand but more pain then I can stand in the site where the battery pack is. I haven't been able to bend or much anything else .I lay on ice packs 10 hrs a day.. Been to my docs a few times and been told I should heal soon..I'm upset and in pain.right now I wish I would not of made the choice to have this put in
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    • Posted

      Hi,thats really wierd that your unfortunately suffering so much i had my surgery and was walking the next day in pain ofcourse and got sent home 3 days after,from then on i just got better and better untill the muscle stinging,well lately my muscles on the top half of my back are really painfull and i might have only just cleaned my teeth and the pain last for sometimes a week,but we worked out that by smothering my muscles with deep heat and relaxing in bed the pain went in a few days,as much as i want to believe and have met so many on no medication anymore just the machine i have decided to wait till the end of the year and then have it out,i am on 100mg sr tramadol+1800mg gabapentin daily and even before when i took 400mg tramadol +3600mg gabapentin daily my pain is no different now than when i hurt myself 18 years ago ,let me know how you get on thru here and i wish you all the luck with however you try or what ever you try in the future.☺
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    • Posted

      Thank you.the area where my battery pack is whats causing me so much pain.the muscle kerps seperating.its been 1 month since the stimulator was put in.the surgery took 5 hours .im not hapoy with it.i have almost tge same crps pain and now have the torn muscle pain.i hope in time it gets better.im on hydro 10s 4xs a day and 3200 mg of gapepentinr..crps is a nightmare.i lost my job and im living on disability which is 60 % of my income...im sorry im having a bad day.ill update in a week or so
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  • Posted

    Hi, I am 14 and have CRPS in both my legs and now in my spine. I have 2 cables in my spine for my feet but am now going back for a 3rd. What you are experiencing is completely normal. I had the same problem for several months until my specialist told me to go to the gym and bulk up so that you ultimately become the one in control.

    It's not easy to cope with a spinal stimulator, especially at the age of 14. All I did was dislocate my ankle and foot in 3 places and fracture 4 bones. I didn't even know that this existed and now I do fundraisers to raise awareness for my condition. I even do marathons ( that's usually when I raise the most money) but my point is I can now do things that people said I would never be able to do again, you will get through. I do advise swing the surgeon just to be safe. But I also recommend working out doing weights,running/walking and boxing. Hope it all goes well👍🏼

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  • Posted

    I have 3 leads as well.I'm a bit over weight and joined a gym just before my stimulator was put in but now just cleaning my house requires me to be on ice packs for hours.its been 5 weeks since the surgery and I'm swollen and it's painful.I'm hoping it gets better .being 14 is definitely a advantage for you because the younger you are the better chance you have of beating this..that's great that you raise awareness for CRPS! So many people have no idea what it is and how we suffer.I'm very happy for your success in this.thank you for the input,when I can handle it I will be back at the gym
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    • Posted

      Hi princess1970, prior to my stimulator being put in I was 130kg, and my doctor advised to join the gym. With the help of my dad, gym ladies and my mates I have managed to lose 30kg in under 6 months without exercising. I will never regret my choice to join the gym and get healthy. All that I did was changed my diet. Rather than eating a hamburger and fries I will now have a salad with chicken or yoghurt.

      It sounds hard but with the right support anyone can do it 😄💪🏽

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    • Posted

      Glad to hear you're doing so well at the age of 14. I've been held prisoner by this illness for over 5 years and would give anything to go to the gym.  My pain is in the original site of my left elbow, arm and hand. Miss now moved to my head, eyes and the left side of my face.  It's now starting to go down my left leg.  All the signs are there.  I'm in bed at least 2-3 days a week because the pain has sparked chronic fatigue syndrome.  I used to be like a lil energyzer bunnie.  I applaud you for beating this horrible illness.  Please keep up the great outlook on life.
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  • Posted

    Well after 2 months of trying to heal from my nerve stimulator surgery I'm still on ice packs and so weak .I was actually better off mobility wise before the stimulator and to to it off scar tissue has caused my leads to !I've so in order to get the stimulation to my hand I have to tilt my head down and hold up my hand... I joined the gym but pain from the battery pact and weakness will not allow me to even walk the treadmill.

    Debbie0 I'm so afraid I will end up with chronic fatigue syndrome..I'm so sorry you are now dealing with that as well. I hate to be a downer but young kids have a very good chance to bounce back from this. But the older you are and the longer it took to get diagnosed the harder ( if ever) it is to beat this. I've been reading alot on it. Myself being 45 and it took over 2 years to diagnose me my odds are not good. The stimulator gave me some relief in my hand and head but losing the ability to move !much because of pain from the equipment and insicions so far is not worth it..and now with the leads moving I'm back to square 1 but now the rest of my body is damaged.so now to get my self up and fight some more for a answer.i wish you all well

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