Nervo hf10 SCS moved & wires coiled, help plz
Posted , 4 users are following.
hi
i had my nervo hf10 scs implanted in january & have had nothing but trouble and more pain with this. ive had no relief pain wise for my back which is why i had the device. i complained to the consultant theat the device had moved & twisted & felt like it had twisted upside down & continues to move like different directions, so it can be moved upside down, sideways & as though it has flipped from front to back & i get a big dint in my bottom. i also feel like i have really bad pain as though somebody is continuously pushing/pressing on the device. i cant put any pressure on the leg & is dangerous when driving as it goes numb the leg that it is fitted in. i cant sit or lay or put pressure on that side thats implanted.
i complained to pain cons & nurses & nervo company who said theres noway it can move & think im just moaning/imaging it. however when the device was fitted they didnt take any final scans (as its done under guided xray) so have nothing to look at or they have been lost etc. my last visit to pain nurses & nervo team i continued to complain & say take it put as its hurting & not helping at all. nervo lady said she could see on computer when they check the leads & ammend the programms that she could see that it looked like one of the leads had moved abit but maynot have much affect but they couldnt see the 2nd lead, eventually they requested for me to see the consultant again & requested xray to check position of device/wires etc which i had a week ago & i could see that the device is actually upside down & looks like it is back to front aswell & the wires are all coiled. the radiographer wouldnt say much as she didnt have anything to compare the leads to when had it implanted to see if they had moved etc but she did ask when ive an appointment with my consultant, i am awaiting this. anybody had anything like this & what happened? thanks
0 likes, 3 replies
jackie56101 Diamond14
Posted
Diamond14,
So sorry for your pain my doctor wants me to try this, but all I hear is patients having problems after they are implanted. I have question did you do the trial first ?? if so did it help with your pain
thanks
Jackie
tamra73559 Diamond14
Posted
hi,
i had mine implanted in 2015. i had pretty good results at first, but im now going thru the process of having it removed. i havent turned it on or charged it in 6 months. since i wasnt getting any relief from it, i thought i would just be able to turn it off and leave it in. its now malfunctioning. i have constant vibrating/buzzing in my back that goes down both legs. the other day i thought maybe if i charge it and turn it on to see what happens, it cant be much worse than it is now, except now it wont even let me charge it. its not making any contact with the charging paddle and the device. i did have my pcp take an xray to see if everything was still in place, and everything is where it should be.
i wish you luck finding out what is wrong, but be prepared. i think they will do whatever they can to talk you into replacing it. i will NOT let them put anything else in my body. i wish i had done more research before i had this done. according to the research i found out now, spinal cord stimulators are one of the highest rated devices implanted in the body that malfunctions.
good luck, i hope you get some answers
mark69155 Diamond14
Posted
i have 2 units installed (one cervical and one lumbar)I've been very happy with mine. and I had a fantastic/very well respected surgeon.Maybe you should see a different doctor than the one who put it in to get a second opinion Maybe you didnt have an experienced surgeon?.Mine actually argued with NEVRO because he wanted to placed my leads in a non-traditional way (in me) due to my specific issues.....My Dr trains docs around the world on technique...and often has some doctor from abroad shadowing him during my appointments. i have nothing but positive things to say