Nervous about meeting with Neurosurgeon
Posted , 6 users are following.
I have an appointment with the Neurosurgeon tomorrow morning to discuss surgery solutions for my TN. I also have MS. I feel quite anxious about it. Wondering whether others felt the same.
0 likes, 10 replies
army183 Sasha8101
Posted
You’re bound to be nervous so why not write down a list of questions because you’ll forget some of them and kick yourself in the car park afterwards!
He won’t mind you doing that and actually will be quite pleased to be able to answer your queries, offer you some treatment options and give you some info on likely outcomes for you specifically. There is a huge evidence base that they have access to so they will have a pretty good idea for cases like yours.
Go on, write down your questions and ask them all!!!!
Good luck, let us know how you got on.
Keep safe
Big D
PS: where are you? Are you in the UK?
Sasha8101 army183
Posted
Best wishes
Sasha
khan123 Sasha8101
Posted
sharon33606 Sasha8101
Posted
i too have requested a consultation with my neurologist with a view to asking to meet the neurosurgeon who will perform required surgery. I would be asking loads of questions and sharing your anxiety and also ask how many surgeries of this nature he/she has performed and outcomes. So feel for you. Take care and let us know how you get on.
wavedancer Sasha8101
Posted
Hi Sasha,
I'm sorry about not replying. I've only just read your post. I hope the meeting with the neurosurgeon went well despite you being so nervous. Big D said everything that I would have said! Please let us know how you got on.
Best Wishes
Chris
Sasha8101
Posted
Sasha
wavedancer Sasha8101
Posted
I'm so pleased that the appointment went well. Hopefully the 2 doctors will talk it through and work out what is best for you. I'm sure I read somewhere that MS sufferers are more likely to have TGN than those that don't have MS. However, that may not be true because when I was researching, before I had surgery, I was in a Tegratol haze and I felt my brain was disconnected from the rest of my body! Keep in touch.
Best Wishes,
Chris
sally90 Sasha8101
Posted
Hi Sasha,
I'm sorry, I have only just seen your letter and I do hope your appointment with the Neurosurgeon went well. I also have TN and MS, last year I had Gamma Knife Surgery, it made the TN worse for a couple of months then I woke up one morning with no pain at all, this lasted for about 2 months then it slowly went numb now the whole of the left side of my face is numb and I do have odd pins and needles in it, however, it is definitely better than TN 100 times better and not to have to take those awful drugs that made me feel like a zombie.
I would say go ahead with surgery. I look forward to hearing how your appointment went. I was offered Gamma Knife or an injection.
I wish you very good luck and am thinking of you.
Sally
khan123 sally90
Posted
Thanks and regards
sarah66119 Sasha8101
Posted
Glad it went well!!! Hope you'll soon be (less) pain free!!! Xoxo