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neuro complications from infections

Posted , 4 users are following.

jez4355
jez4355

Hi there, 

im looking for some advice on the issues ive been having the last few months. I have recently found out I have been coinfected with dengue and Chikungunya virus and it seems that this infection has either entered my cns or is attacking my nerves. I seem to be getting progressively worst and am now becoming very down. My arms and legs fall asleep wuite often and every inch of my body twiches and has random sharp pains very frequently. The doctors are completely clueless regarding chik virus here in the UK and i dont seem to be getting anywhere fast> does anyone have any advice regarding these complications....im really scared that these are going to last for ever or get really bad to the point i cant feel my arms and legs at all!!

all the best, 

Jez 

1 like, 11 replies

11 Replies

  • jenny60469
    jenny60469 jez4355

    Posted

    How awful, Jez.

    What about the hospital for tropical diseases ? Can they help you and your doctor ?

    That's the only advice I can give as I have no experience of this.

    Good luck.

    • jez4355
      jez4355 jenny60469

      Posted

      Hi Jenny 

      I have been to tropical diseases here in the UK but to honest they have been terrible. Told me chikungunya is from chickens and doesn't cause Neuro issues. I found a world health document that said forty per cent of people have Neuro problems and it has nothing to do with chickens so I have lost faith in them. They haven't even suggested a treatment plan for me and have pretty much just told me to go away and come back in three months. I think what I have is rare,28 reported cases in the UK last year so everyone is clueless. 

      Thanks for the luck :-)

    • jenny60469
      jenny60469 jez4355

      Posted

      Don't give up. Make people realise that they must do something for you.

       

  • gaiagal66
    gaiagal66 jez4355

    Posted

    Hi - I have to take some time and study up on the conditions you have mentioned.  However, a very close friend of mine had a variety of symptoms for years, and no doctor could come up with an answer.  I may be grasping at straws here, but I wonder if what I mentioned to her doctor (I went to all her visits 'cuz she didn't drive) might have some benefit for you.  I asked the doctor if he had ever checked for Lyme disease.  He said no.  They checked and she had it.

    Now Jez, this is only a suggestion, but Lyme disease is a stinker of a disease causing different symptoms in everyone, but many have similar ones also.

    I wish I had a better answer, but I wonder if they have ever tested you for Lyme disease.  You are in my thoughts and prayers.

    Jamie

    • jez4355
      jez4355 gaiagal66

      Posted

      Hi there, 

      thanks for your reply. I have been checked for lyme a number of times as it was the first thing I thought of. Im pretty sure that the co infection of dengue and ChikV has entered my CNS and this is why Im having the issues. Im currently trying a mega dose of vit c and I seem to be having some small improvements which is great. Im also of alcohol and have quit smoking since I know these are immune supressers. 

      I just really hop eI can kick these viruses in to touch soon as have been feeling horrible for 9 months!

      Jez 

  • terrified_69046
    terrified_69046 jez4355

    Posted

    If it is MS i think your symtoms would be coming and going unless it is the progressive type. Not sure
    • jez4355
      jez4355 terrified_69046

      Posted

      tunrs out I had false positive on my tests so back to the drawing board, clear mri has made me less nervous about MS but im still not sure whats happening. Last blood test showed low igm level, which may help with finnding out the route cause!
    • terrified_69046
      terrified_69046 jez4355

      Posted

      this is weird though. I have the same exact symptoms you have since my chikungunya infection. I live in the caribbean where the infection is common. You sure it isnt post viral syndrome?
    • jez4355
      jez4355 terrified_69046

      Posted

      that is interesting, i only tested positive on the IGM test not IGG or the actual virus itself, maybe it was a evolved type of the virus? how long since you were exposed? I have been almost a year now and am much the same although the nerve pain has reduced I still have crazy twitching and muclse issues. I hope it is post viral, but theres no real way of telling.
    • terrified_69046
      terrified_69046 jez4355

      Posted

      i hope so too. Just like you it has me worried. Im curious to know why the doctors would suspect chikungunya and not something else then tell you it was a false positive. Send me your email so we can communicate there and compare notes
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