neuro complications from infections

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Hi there, 

im looking for some advice on the issues ive been having the last few months. I have recently found out I have been coinfected with dengue and Chikungunya virus and it seems that this infection has either entered my cns or is attacking my nerves. I seem to be getting progressively worst and am now becoming very down. My arms and legs fall asleep wuite often and every inch of my body twiches and has random sharp pains very frequently. The doctors are completely clueless regarding chik virus here in the UK and i dont seem to be getting anywhere fast> does anyone have any advice regarding these complications....im really scared that these are going to last for ever or get really bad to the point i cant feel my arms and legs at all!!

all the best, 

Jez 

1 like, 11 replies

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11 Replies

  • Posted

    How awful, Jez.

    What about the hospital for tropical diseases ? Can they help you and your doctor ?

    That's the only advice I can give as I have no experience of this.

    Good luck.

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    • Posted

      Hi Jenny 

      I have been to tropical diseases here in the UK but to honest they have been terrible. Told me chikungunya is from chickens and doesn't cause Neuro issues. I found a world health document that said forty per cent of people have Neuro problems and it has nothing to do with chickens so I have lost faith in them. They haven't even suggested a treatment plan for me and have pretty much just told me to go away and come back in three months. I think what I have is rare,28 reported cases in the UK last year so everyone is clueless. 

      Thanks for the luck :-)

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  • Posted

    Hi - I have to take some time and study up on the conditions you have mentioned.  However, a very close friend of mine had a variety of symptoms for years, and no doctor could come up with an answer.  I may be grasping at straws here, but I wonder if what I mentioned to her doctor (I went to all her visits 'cuz she didn't drive) might have some benefit for you.  I asked the doctor if he had ever checked for Lyme disease.  He said no.  They checked and she had it.

    Now Jez, this is only a suggestion, but Lyme disease is a stinker of a disease causing different symptoms in everyone, but many have similar ones also.

    I wish I had a better answer, but I wonder if they have ever tested you for Lyme disease.  You are in my thoughts and prayers.

    Jamie

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    • Posted

      Hi there, 

      thanks for your reply. I have been checked for lyme a number of times as it was the first thing I thought of. Im pretty sure that the co infection of dengue and ChikV has entered my CNS and this is why Im having the issues. Im currently trying a mega dose of vit c and I seem to be having some small improvements which is great. Im also of alcohol and have quit smoking since I know these are immune supressers. 

      I just really hop eI can kick these viruses in to touch soon as have been feeling horrible for 9 months!

      Jez 

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  • Posted

    If it is MS i think your symtoms would be coming and going unless it is the progressive type. Not sure
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    • Posted

      tunrs out I had false positive on my tests so back to the drawing board, clear mri has made me less nervous about MS but im still not sure whats happening. Last blood test showed low igm level, which may help with finnding out the route cause!
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    • Posted

      this is weird though. I have the same exact symptoms you have since my chikungunya infection. I live in the caribbean where the infection is common. You sure it isnt post viral syndrome?
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    • Posted

      that is interesting, i only tested positive on the IGM test not IGG or the actual virus itself, maybe it was a evolved type of the virus? how long since you were exposed? I have been almost a year now and am much the same although the nerve pain has reduced I still have crazy twitching and muclse issues. I hope it is post viral, but theres no real way of telling.
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    • Posted

      i hope so too. Just like you it has me worried. Im curious to know why the doctors would suspect chikungunya and not something else then tell you it was a false positive. Send me your email so we can communicate there and compare notes
      Report

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