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Neurocardiogenic syncope

Posted , 3 users are following.

stevenmolljd
stevenmolljd

I was diagnosed about 2 years ago and it lasted for about six months. I could never figure out a trigger that was causing it. They had me on multiple medications which they had me stop taking due to them not working. I had a positive tilt table test where my heart rate and blood pressure would plummet and I would pass out. I have hit my head numerous times and had numerous concussions. They had me in the hospital for two days performing multiple test with a neurologist and cardiologist and found nothing. The only thing that made it stop was bed rest, hydration and a high salt diet for about a month. It just recently came back about two weeks ago and I've passed out about 10 times in that 2 weeks. I can't afford to keep missing work and be on bed rest. Has anyone else had something similar and found some alternative method that works? Also I forgot to mention they put an implantable loop recorder in my chest that just shows my heart rate dropping when I pass out. Any help or suggestions would be greatly appreciated. Thank you in advance. Left me know if you have any questions or need further information.

1 like, 5 replies

5 Replies

  • Rat545
    Rat545 stevenmolljd

    Posted

    I have same of the same symptoms..   was driving about 4 years ago on interstate,  fainted and  ran  into the median, went to my GP, he got an appointment with electrophysiologist. I was put on Flecainide.......that med has SAVED my life...I do not have as many near syncope spells and they are not a full blown FAINT...  just  ringing in ears, black out feeling but do not lose consiousness..  Would love to talk with u further. I also have a loop recorder implanted in chest,,  I had ABLATION procedure in Aug. and was better for a while but the near syncope has returned. Sure does seem stress related. Not sure. The electrophysiologist who performed the ablation said I am still healing and if the near syncope spells continue he wants to repeat the ablation. Not sure if I will go thru with it. Would love to speak with you. Please reply. Thx
  • Cowgirl918
    Cowgirl918 stevenmolljd

    Posted

    I am in the US. Have similar history. I take Florinef (fludrocortisone) every day. It has been a life saver for me. Check with your doctor.
  • Rat545
    Rat545 stevenmolljd

    Posted

    Sorry you are having so many complications. I, too, have had multiple "near" syncope episodes because of bradycardia. I have a loop recorder implanted. In Aug 2016 I had a cardiac ablation procedure to correct AFIB. Seems to have been a success but I still have near fainting because heart beat pauses. Right now I am waiting to be scheduled to have a pacemaker implanted. I am on Flecainide total of 250 mg a day as well as Eliquis and a small dose of atenolol. Before I started Flecainide about 10 years ago I had numerous fainting spells. It has saved my life but I still have problems, just not as frequent or severe. 

    • Cowgirl918
      Cowgirl918 Rat545

      Posted

      May I ask what is a loop recorder? I am having my 4th Holter today.
  • Cowgirl918
    Cowgirl918 stevenmolljd

    Posted

    So have either of you been given the cause for your your arrythmias? I had suggessted Florinef thinking you needed more fluid volume but it sounds like you each have autonomic or electrical issues. I am not familiar with your meds but will look them up. Arrythmias are part of my autonomic dysfunction, I go from one extreme to the other. I am often bradycardic at rest but then will have runs of SVT (fast). Any info you care to share will be appreciated.
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