neurologist appointment
Posted , 11 users are following.
first appointment with neurology today (and last) and i think they dragged someone off the street and stuck a 'neurologist' badge on him. no use whatsoever, he could see i was so stressed by me crying my heart out and saying if i take one more pill i will take the lot, my feet and ankles are swollen and i can't get my boots on, i've gone from size 14 to an 18, i shouldn't even bee driving, i drop things, my words come out jumbled and all the rest of it. told him i have it on both sides and guess what he said? theres nothing i can do just keep taking the tablets. yes, really, thats what he said (in between words that i could understand as he could hardly speak a word of english). i've absolutely had enough of this. my poor son is going through his exams and he doesn't know if he will come home to find me alive or dead, i can't handle this. my life has stopped, i see people walking past my house with their dogs, my poor dog hasn't been out for months, the grass at the front is 3 feet tall, i just cannot go out, my life is just nothing. i can't take this anymore.
1 like, 46 replies
yvonnemcc fed-up
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Guest fed-up
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Prayer can be very powerful.
It seems to be a matter of trying many things until you get the best one for you.
Best wishes
patricia72765 fed-up
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Go out today and buy some B complex. If you are on neurontin (gabbapentin) wean yourself off of it. Try taking a couple of adult aspirin a day. If you are on an anti convulsive drug, they have bad side affects including depression and suicidal thoughts. Ask your GP for some OxyContin or morphine. I feel so badly for you and am very concerned about you. Be more proactive with your GP and let him/her know how you are feeling. Call a chiropractor today and set up an appointment. They have been a great help for me. If that doesn't give you some relief next try acupuncture. Hang in there and let us know how you are doing. We are all here to support you.
Patti
mommaphipps fed-up
Posted
Wherever you are from go and ask for a 2nd opinion. If the medication is making you ill also ask about surgery. I had a microvascular decompression in March after suffering bouts of pain on and off for 4 years and trying various meds.I cannot believe the difference it has made to my life. I was taking Verapamil, Lyrica and blood pressure tablets along with water tablets for swollen feet and legs, worsened by the medication I was taking for neuralgia. The surgery was not half as bad as I was warned about and after 3 days I was back home. A little delicate for about 5 weeks compared to what I used to be (but of course Im nearly 60 so that could be age related also) My med have almost halved now and I am being weaned off gradually so that my system doesnt go into shock. I am pain free apart from a very dull throb occasionally. I have my life back. My surgeon is wonderful. Mr Cruikshank, Q.E. hospital, Birmingham. UK. I have a follow up appt next week. I recommend this to anyone who feels it is for them. Good luck
fed-up mommaphipps
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the way my son speaks to me makes me want to top myself even more quicker. i just don't know what to do anymore, im just a mess, i can't stop crying i can't go out.besides the wind bringing it on it just comes on its own.
Glor888 fed-up
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First and foremost back to your Drs and request a 2nd opinion from a Neurologist.
When I went to see mine she asked me all sorts of questions, asked about my medication and what I had already been on that didn't work. She then got a prong and put it on each side of my face I can't remember what she asked me. But the only thing I didnt like was when she said I could always stop taking my meds to see if the Neuralgia was still there. She gave me a list of tablets to try and see if each one didn't work. I told her I had tried all of them except one.
Nowhere whilst I've had treatment over the last twenty years was any operation suggested to me other than the one where they drill a hole in the skull and place a piece of felt between the Nerves. But unfortunately there are risks. So I declined.
The lists of medication you're on maybe reacting against one another. Your swollen ankles could also be a side effect from one of your tablets.
All I can suggest is you put one foot forward and then follow it. Don't worry about the housework/garden concentrate on yourself and children first and before you know it you'll soon be back on track.
But definitely, definitely go back to your GP for a 2nd Neurologist opinion. If still no joy, go back and they'll soon pay attention. You should be on meds that are suitable for you. Tegretol is the best if you can tolerate the nausea etc for a short while, after that you won't know your even on them only at night when it catches up and you feel drowsy.
Good luck and keep in touch and let us know how you get on.
Best regards
Gloriana
mommaphipps Glor888
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fed-up
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christina96841 fed-up
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fed-up christina96841
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christina96841 fed-up
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fed-up christina96841
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caryl33332 fed-up
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Valkyrie fed-up
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colin69485 fed-up
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So sorry to read about your situation. Yes, you are clearly at your wits end and seem to have no where to turn to!
Something has to change that will give you some hope and, above all, a plan to deal with your ailments, which are clearly critical.
Firstly, like most of your friends on Patient, I feel you must 'start again'! Start by making a double appointment with your GP and let her/him reassess your situation from scratch. Forget the neurologist for a bit, you need a different form of support to get you through this terrible period of despair - perhaps some counseling to go alongside your medical treatment that your GP will want to review. I was once told that 'Nothing changes unless something is changed!'. Start again, a new strategy that brings fresh ideas and hope with it.
Take care and use the many people that clearly care about you on Patient line. I live in Kent, England. Colin x