Neurologist Appointment Results
Posted , 7 users are following.
Hi Everyone, So basically you proabably all aware that the last month or so I have been suffering with these strange sensations of frequent deja vu and feelings of unreality and like my vision feels dreamlike and get the rising feeling of fear in stomach etc...
So I have convinced myself through extensive reading on websites, google, forums etc... that I suffer with Temporal Lobe Epilepsy which I had a lot of the same symtoms years ago. So I had my neuro appointment yesterday and he was very nice and explained everything to me. I told him what I have been suffering and the symptoms and my fears over it being a form of epilepsy and his response was that if it was TLE he firstly would have expected me too of had a full blown seizure by now and it would be unusual that these feelings havent progressed into something more. He also mentioned if whether I lose memory or if I am unaware during these episodes as this is normally the case with this form of epilepsy. I told him that this was not in my case. However he has referred me for an EEG in 4-6 weeks I think just more so for piece of mind he was trying to justify.
Thing is I am still reading epilepsy forums about peoples experiences and they still match mine and people say that it could still be epilepsy.
My question is should I believe the words of my neuro and accept what he says that it could be anxiety? Or do I believe peoples experiences and accept their could be something neurologically wrong?
I am scared of these seizure feelings.
0 likes, 11 replies
allison1984 jonathan99185
Posted
Hey
I think yes you should believe the neuro dr
I've seen 2 different neuro drs when i first had those feelings and they both told me it was not seizures or anything neurological.
Anxiety has a way of convincing us that these odd bizarre feelings couldnt possibly be from anxiety.
So we look for other medical reasons in the end its just anxiety .
I've been there plenty of times and i still do because i have an anxiety disorder.
Get the eeg done for piece of mind so you see that its not anything other then tgis horrible anxiety. ?
jonathan99185 allison1984
Posted
You are right and thank you for being understandingI am being referred for Pyschological help through my GP as well. I think the reason I have my slight doubts is due to the fact these symptoms are still their and not shifting. I am trying honestly to think its not epilepsy but it is because I read things on the epilepsy forums that still suggest that it could still be seizures and get worse.
Did you mention dissociation? My vision does feel cloudy but its not constant sometimes this happens just out of the blue and then the racing thoughts, deja vu, memory flashbacks and then the rising stomach feeling which makes me think its seizures from what people on epilepsy forums say.
I am at a loss.
allison1984 jonathan99185
Posted
Hi
No problem i really do understand how you are feeling .
I've had health anxiety since i was 17 im now 33
The health anxiety has in 2 occasions nearly sent me into a mental hospital no joke it was the worst thing that happened to me .
The last health phobia/obession i had in November 2015 was terrible my doctor nearly had to involuntary admit me in a psychiatric ward , and ever since this happened i have suffered depersonalization and derealization .
I like yourself can convince myself that im sick , i would google symptoms to the illness constantly non stop and keept going to the doctors looking for reassurance and asking family .
In the end nothing would convince me that i didn't have something wrong with me .
It was madding but i found i couldn't stop searching for an anwser to these REAL symptoms i had .
My in my future i will start cognitive behavior therapy as i never ever want to be as unwell as i was in 2015 ..
Health anxiety is tricky because we start to produce real feelings and symptoms just from thinking about it , somatic feelings .
It's really great your doctor is sending you for therapy ? it helps honest
In the mean time go get that eeg done rule seizures out .
One thing ive learned since being so unwell is getting tests and googling is the absolute worse thing you can do , however i understand how powerful health anxiety is .
Can you try one thing today " dont look up any symptoms online or ask reassurance from anyone just for today ?
Give it a try you will find by tonight the thoughts will be a bit slower .
Oh and the dissociation can be constant or come on go it can last for a few seconds or hours and the vision changes that happens with dissociation can come and go , when i have vision changers from dissociation it only last a short time and goes ?
jonathan99185 allison1984
Posted
I will start by not looking at any symptoms online which are just fueling my anxiety.
I am even starting to wonder why the neurologist would send me for an EEG if he didnt think I had seizures. I question that?
Yes I am going to be referred for therapy immediately as its so important I get to the bottom of this.
Its weird the derealisation feelings that I get it comes in waves but may only last seconds and as my vision starts going cloudy and hazy and unreal the panic starts and all the what I call seizure related symptoms start even though this may only last seconds at a time.
I am praying that the EEG does not show anything but question as to why I am going
marleen85993 jonathan99185
Posted
Hi Jonathan you really are never going to be reassured by anyone as you are totally convinced you have this disorder.You are looking for something that isn't there and unless you get treatment for health anxiety you are never going to have any peace of mind.
jonathan99185 marleen85993
Posted
You are right and thank you for being understandingI am being referred for Pyschological help through my GP as well. I think the reason I have my slight doubts is due to the fact these symptoms are still their and not shifting. I am trying honestly to think its not epilepsy but it is because I read things on the epilepsy forums that still suggest that it could still be seizures and get worse.
I am at a loss.
marleen85993 jonathan99185
Posted
Jonathan you are fixated on symptoms which back up your irrational fear.You are not getting any ease as you are convinced that you are going to have a seizure and that hasn't been addressed.If you work hard in treatment and push through your fear the symptoms will decrease .
luis714 jonathan99185
Posted
pamela51740 jonathan99185
Posted
I have all these symptoms as a result of my generalised anxiety disorder and you are suffering from derealization, it's not very nice unfortunately.
jonathan99185 pamela51740
Posted
I will start by not looking at any symptoms online which are just fueling my anxiety.
I am even starting to wonder why the neurologist would send me for an EEG if he didnt think I had seizures. I question that?
Yes I am going to be referred for therapy immediately as its so important I get to the bottom of this.
Its weird the derealisation feelings that I get it comes in waves but may only last seconds and as my vision starts going cloudy and hazy and unreal the panic starts and all the what I call seizure related symptoms start even though this may only last seconds at a time.
I am praying that the EEG does not show anything but question as to why I am going
jan34534 jonathan99185
Posted
Listen to your neurologist. This is what they go to school for and they have vast experience with patients and I'm sure he has seen this in other patients. They know what they're doing. I have had the déjà vu associated with anxiety also many people get that with anxiety.
i'm sure you are perfectly fine it's just that you don't have control over your anxiety and negative thoughts. I would still get the test so that you have peace of mind. Once the test is normal then you really need to start working on managing anxiety.
because if it's not this concern it will be something else in the future and it will drive you crazy your whole life. Believe me you don't want to have to live like this like I did for 20 years. I finally discovered mindfulness which has really helped me a lot.
What has helped me has been visiting a counselor to discuss this. It really helped me.
Listen to The meditation on YouTube called detachment from overthinking.you need to learn how to separate negative and fearful thoughts from yourself.