Neurologist six month follow up

Posted , 6 users are following.

I've got a second appointment to see my Neuro next month. I last saw him in January. I had an mri in February but they said it was clear.

I'm still having symptoms.

Just wondering if the neurologist will keep seeing me every six months or do you think I'm likely to be signed off from the neurologist. I have no idea what to expect or to ask him.

Do I just keep going back and having mri's or do they sign you off after a clear first mri?

I'm in the UK too so it may be different to other places.

I'm currently having weird numb stingy sensation in my right leg at the moment. It started in my toes and went up just over my knee. Most of my symtoms have been on the right side

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5 Replies

  • Posted

    I have been having numbness since 2012 in différent parts of my body but most recently i have been having loss of eyesight in my left eye. Its last about 15 minutes before it comes back. Sometimes when this happenes i get headaches sometimes not. My mri had lésions i thought for sure i had ms. I am seeing thé neurologist tommorro, but was told by another Doc that i could have opthamalogical migranne. Some of thé symptômes seem thé same. Maybe u can look into that.

  • Posted

    Hi Essex girl, I imagine that the follow-up is to see if you're still having neuro symptoms. As you are, I'd write down as much as you can remember about your symptoms, any dates of either symptoms starting OR ending could be useful, any questions or concerns too. Take someone with you do the appointment, if there's anyone who you'd be comfortable taking along, and they're available, take them, as an extra set of ears is handy for remembering information. I was diagnosed with MS in 2004. The brain MRI's that were done back then never found brain lesions, but I had significant areas of clumped together lesions around my cervical (neck) spinal cord, my lumbar puncture sample was also positive. All in all, I had clear signs of MS. Most people seem to find that it takes several attempts to get to diagnosis (of MS). One obvious problem, during diagnosis, is the body's ability to heal, in people with relapsing remitting MS.

    Individual patients report symptoms in wildly varied ways, too. So subjectivity becomes a potential hurdle, as well. Basically, MS is an all-round pain in the bum. Sorry about prattling on.

    I recommend finding some kind of relaxation techniques, as, whatever health problem it turns out that you have (hopefully not MS!), the whole process of finding out what it is that you have, is REALLY stressful. Good luck.

    PS. I'm in the UK too.

    • Posted

      I wrote stuff down last time I went but the neurologist wasn't interested in times etc just wanted symptoms and when they roughly started. He wasn't very nice to be honest and I requested a new one but got told it have to be revered from my gp and start all over to do that.

      I'm not expecting my diagnosis to be ms to be honest as he said fnd last time before I even had the mri done. I don't think I have fnd though and even if I do there's no help with that.

      Do you think I'm likely to get sent for any further mri's ?

      I suppose that's difficult to answer really.

  • Posted

    I have a combination of what both of you are experiencing. I have numerous brain lesions mostly subcortical. I have also been experiencing a number of symptoms for several months. My most pronounced symptom is a weird shocking/throbbing sensation in my left ankle region. This is more pronounced after light activity like just walking my dog. I also have temperature sensitivity in my bilateral calf region that seems to build throughout the day. It has made it almost impossible for me to wear shorts and I live in a very hot part of the US.

    My recent follow-up with the MS Specialist at the Cleveland clinic completely thew me for a loop. I expected to be diagnosed MS. Instead the neurologist said my lesions had not changed over the 6 month period and my thoracic MRI was clean along with lumbar puncture. She has diagnosed me with small fiber neuropathy and says I do not have MS. At least she agreed to have me get a cervical spine MRI. I await those results this week.

    SO we are all in the same boat. Me and 2gal seem to be a little further on in the process, but I will say it's frustrating and you may not get any answers tomorrow. I highly recommend that if your Neuro is being vague, you need to look them in the eye and ask them, if not MS, then what could be causing this. If you have the money you may want to seek a naturopath. They can at least get you on the right track with vitamins, minerals, supplements, and a healthy diet.

    Let us know what the neurologist has to say.

  • Posted

    I am also like you. I had a MRI done back in December. The results were as follows. 

    Tiny t2 flair hyperintense foci within the subcortical white matter of the left frontal lobe just above sylvian fissure not associated with mass effect,restricted diffusion, or abnormal enhancement. This focus is nonspecific and can be seen in normal patients.

    However I still feel some tingling in my left arm. And now its been a month that my eye twitches. I hardley sleep and I feel light headed a lot. I do suffer from anxiety but to me most of the MS and anxiety syptoms are similar. The tiny lession has me woried every more since lesions are seen in patients with MS. I am considering a second opinion. 

     

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