Posted , 6 users are following.
Hi all I was wondering if anyone who has SS associated neuropathy in the legs has abnormal reflexes? My ankle reflexes are non existant (0), my plantar ones are also absent yet my knees are tending to be hyperreflexic (3+).
0 likes, 5 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
Tumtum1963 Megheart
Posted
Yes I have same. I have been diagnosed with small fibre neuropathy unofficially by my neurologist but also have "significant wear and tear" in my lumbar region which I think may be progressing to affect my lower body now. My rheumatologist observed no reflexes in my Achilles' tendons/ ankles a few months ago. I'm seeing her again next month so will ask about this.
Megheart Tumtum1963
Posted
I will be interested in what your rheumatologist says about this. I may raise it with mine as well to see if she thinks it is related to my small fibre neuropathy also.
hippyginger Megheart
Posted
Funnily enough I also have impaired reflexes in my ankles and have peripheral neuropathy. I've got repeat neurophysiology tests next month to see if there's any change since my last tests a year ago. Personally, I think there is a deterioration as the sensitivity, particularly in my lower leg, is definitely not great.
?Mind you, I've got some similar problems up the top end of my body because when the neurologist put the tuning fork on my breast bone, I couldn't feel it vibrating. I even suggested to the Consultant that maybe it needed banging again before she tried it there......naturally it didn't. Falling apart me lol
?Probably not been much help to you Megheart, but at least you know you're not alone lol
?Hippyginger
Megheart hippyginger
Posted
Thank you hippyginger. Can't talk now but really appreciate your response.
cindy6100 Megheart
Posted
Hi Megheart, Yes I was Dx with Sjogrens & Small Fiber Neuropothy (SFN) by a Neuro. Dr. who did autonomic testing. Of course, now I'm finding that Rheum. Drs. are not recognizing these Dx because they prefer different tests to work up to this Dx. I have numbness, tingling & pain associated with this neuropothy, which is a symptom of Sjogrens.