Neuropathic pain / Fibromagia

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hi there

I have had ddd diagnosed for a four months now and since being off work I had a medical with the occupational health yesterday, Dr A was very sincere and said that I should only go back to work once the conditions are suitable, like in the ground floor, as my department is in the fourth floor at the present time, he said it looked like I had fibromalgia???? today I went to see the pain management clinic today, due to being referred by orthopedic, from ddd, I was very annoyed and upset by his manor, he told me he had a broken coxic bone and doesn't need medication and basically I need to get on with my life...... ....... Anyway later after looking at the note for my doctor, what he advised my doctor to prescribe me as noted above \"Gabapentin\" it is also noted I have congenital/neuropathic pain, which as I have read now is apparently is incurable??? Now if he had explained this in the first place I wouldn't have felt so foolish as if you as a patient don't know whats going on with your body ... you tend to think well am I just imagining things, but now I know I am not, I know its not life threatening .... just unpleasant!!!!!!! Why do they think by blurring things is the answer......haven't we as a patient got a right to know what is going on in \"our\" bodies?????

Do these doctors not realize that they are not helping with this method of Chinese whispers among their work colleagues, it has infuriated me, the only negative thing now I see is how one doctor can give you a medical and assessment in a different way and come to another conclusion..... Doctor A Occupational health doctor felt all my pressure points and noticed there was tenderness muscles in ligaments etc all over the body, where as the pain management doctor did my reflexes and when I explained what the occupational health had said about Fibromalgia he said he had checked for that???? He didn't do the same examination so how can he denote this conclusion????? anyway I have to except this and go with the flow..... go back to work and accept my pain!!!!

Is there anyone else that has this neuropathic pain or Fibromalgia? as I am confused.....seeing my doctor on monday????

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  • Posted

    sad It is very sad to hear that doctorsare not telling patients what's going on with them as I don't just sympathise but am in a similar situation. I too have nerve damage and neuropathic pain and have had this for the last five years. I have had different medications but i seem to be more stable now on Gabapentin plus Buprenorphine patches along with good old paracetamols to help the patches work properly. I have suffered with depression from the pain and get bad flare-ups at times and i also suffer with panic attacks and have been told i am still suffering with post traumatic stress disorder. I have experienced more side effects than enough and am just existing at times, I konw others feel the same as i do, fustrated, angry, bad tempered, upset, totally fed-up with life itself, but we have to keep talking to our gp's, consultants medical professionals and telling them how we are feeling not just about the pain but everthing that seems to link up with it. I am sorry to hear your troubles and if i can help at all then i will be happy to, take care for now M x[size=9:991d4fe6bd][/size:991d4fe6bd][size=12:991d4fe6bd][/size:991d4fe6bd][color=indigo:991d4fe6bd][/color:991d4fe6bd][color=indigo:991d4fe6bd][/color:991d4fe6bd][color=indigo:991d4fe6bd][/color:991d4fe6bd]
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  • Posted

    HI there

    I have seen a Rhuemotologist and now my gp has put me on other medication which seems to be working brilliant, Meloxican which my gp says he knows I have arthritis now as I took my mum to the surgery, and since my mum asked him a few questions he said as there are several types he needs to make sure to get the right one!!!! These new tablets are for Ankylosing Spondylosis, Rhuematoid arthritis and Osteoarthrits, and since reading several readings I am convinced I have Ankylosing spondylosis as on my x-rays I have lost the curvature of my spine, as well as having degenerative discs, and as I have read this is a classic sign????? But as I have put on another thread I am not sure whether my doctor can diagnosis this?? as the Rhuemtologist didn't care to look at my medical file or my x-rays, however all I can do is present my findings to my GP or maybe write her a letter????? Or just suffer with my misdiagnosis???

    Thanks for reading this

    Regards smile

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  • Posted

    Hi there

    I have been diagnosed with Fibromyalgia by my consultant and so I now know it is not in my head, this doctor was finally a sincere and sympathetic professional and he wanted to listen without any judgment of its \"down to my weight\" why I am in pain! etc etc.

    He has said I am to use Gabapentin three times a day along with Amitryptiline and anti-inflammatories. It makes me wonder as I saw a Registrar last time and he said I should just get over my \"back ache\". thankfully I refused to see my original pain management specialist and so this time I saw a Consultant that had more knowledge, I am so re-leaved, hopefully I can get the right medication so I can function better........fingers crossed xx

    Kind Regards

    SES

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  • Posted

    hi my name is deirdre dee for short i have just been diagnosed with fibromalgia dont think spelt it right lol i have been in a lot of pain for over 2 years now had it before but could handle it more but now i cannot it is too bad some days i cannot even get out of bed the last time 8 days i was ill for the pain and not feeling well at all i ached from head to toe's the doctor put me on morphine at x-mas time and it would help fro so long and then had to up it but they still not working now the nurse that i see for my nerves ect she is trying to get my pyc doctor to put me on to gabapenine as her daughter and freind are on it with deluxatine and are much betre they have bad days but they are finding it much easier to cope with it but stick to it with your doc and ask to see some one else for it as it got that i thought half the time i was going mad as i had this pain and no one else could detect it with me i do feel much better in my head now nowing that it has a name and im not going mad if you have this i feel sorry for you as i feel sorry for myself too has it hurts and its a downer if you would like to get in touch with me so hopefully they will get me on these other tablets but not till they have sorted my other tabs out as i take that many with my depession and no sleep i have ibs ans stress incontinence spondalosis thyroids and the rest so i am just walking on this planet not sure what or were some tomes but i do laugh some times or i will cry and cry
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  • Posted

    HI Deidree

    Yes it is a hard battle to get someone to listen to you as I have had this dreadful illness for over a year, and like you I felt I was banging my head against the wall!!!! I have incontinence (I was told years ago IBS but dont get medication for it as my previous doctor is useless) along with lumbar degenerative discs, and loss of curvature of spine, arthritis in hip along with an underactive thyroid and asthma (sounds like a medical journal lol).

    Do you not see any Pain Management for your spondylosis? as I originally went to this for my degenerative discs? and it was when I saw this Professional and his assistant that wanted to listen. It was such a relief, I do recall like you to give this awful pain a name! I am hoping to set up a support group in my area as I remember being so frustrated that no-one listened to me! My own GP however had started the ball rolling as if I had left it to my previous doctor I would have probably ended in the loony bin! As he said get to work you only have back ache!!!!....... yeah right, I changed my GP anyway!!!!

    I do hope you get help soon, but as I take Gabapentine, it hasnt changed my pain much, but everyone is different and some range of meds work for some but not others!!!

    Hope you are having a good day x

    Kind Regards

    SES

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