Posted , 7 users are following.
Has anyone had neuropathy of the feet after Tkr?
I am looking for a natural way, not a pill to help me with this pain, that is depriving me of sleep!
I am 4 months out, my doctor said it will take up to 2 years to go away!
There are perceptions to help, but I just got off all my pain meds, and I don't want to take any more pills!!
1 like, 26 replies
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brucebp june68495
Posted
Hi June...I had double TKR 23 months ago, and had intense burning feet commencing 10 days after surgery. Still experiencing nueropathic pain now, but not as intense as when it started.............i'm taking 3mg of amytripilene daily which appears to suppress the pain somwhat. But still v frustrating! At least your doctor has advised that he thinks it will come right, even if it takes 2 yrs! I
have visited doctors and neurologists, but they all say there is no connection with the TKR operation! I don't believe them, and are certain that it was the cause I'm a fit and very healhty 65Yr old male, and have never had any problems with my feet, or my nerves............I had never even heard of neuropathy! So I'm searching for a diognosis that sounds plausible?
Did your doctor say that the neuropothy symptoms were somrtimes associated with TKR operations?, and had he experienced similar problems with other patients? Would love to hear from you re this!
I know how frustrating you must feel now, having to take meds (for your feet) when you were thinking the knee op would have meant no more meds (for your knees)!
Look forward to hearing from you>
june68495 brucebp
Posted
Hi!
The Doctor would not give me a straight answer about if it's related to Tkr!
I just ordered an herbal suupplement
Called Neuropaquell
The doctor suggested it
I got it on Amazon
I'll let you know if that works.
He also suggested that the Celebrex that I take for knee swelling and pain could cause neuropathy but when I stopped that I couldn't move my knee
Fun times😄
jane75220 june68495
Posted
i My endocrinologist wrote Report blaming statins, ppi'ss, antibiotics, phenytoin for causing neuropathy.
?Some anti depressants can cause it as well.
june68495 jane75220
Posted
jane75220 june68495
Posted
june68495 jane75220
Posted
Not that I know of
I'm trying to find something so I can get off the Celebrex
But for me the Celebrex works for the swelling and knee. Pain
joh13240 jane75220
Posted
joh13240
Posted
it is a strong nonsteriod anti inflammatory med.
june68495 joh13240
Posted
joh13240 june68495
Posted
joh13240
Posted
Never mind i read the rest of the thread.my bad
.
I've had PN for over 8 years and really have heard the words that it will get better. I've gone to many differant doctors and have not found the cure. The best that i have done is to have taken the edge of the pain. By taking meds that are not normally taken for nerve damage. There are all kinds of scam drs and meds that will supposedly cure or take away the pain. So be careful what you do or take. I have tried all the common meds for pain with no real relief or the bad side effects were worse than the PN.
jane75220 joh13240
Posted
joh13240 jane75220
Posted
I've taken gabapentin, cymbalta, all the opioids up to and including morphene, amitriplene (caused a sizure), transdermal patch, compounded cream that had 7 differant meds in it (a witches brew that had an almost instant allergic reaction), coletizne, homeopathic treatments, vitamin supplements. Plus many more that I cannot remember.
I talked to a neurologist at the Harvard medical school who's special interest was PN and he suggested trying clonazepam to take the edge off the pain. This is what i now has take and it works for me. People i have talked to about this freek out saying that I'm addictived to it and the answer is yes i am but it helps by thaking the edge off the pain so that i can function somewhat normally.
I also went to a pain management training program call Mannaging Your Pain taught by a psychiatrist. The lesson plan was to teach you how to mannage your pain and not let in manage you. The program was extremely helpful in lower my pain level.
Gennymac june68495
Posted
Hi June, 15 years ago, at 45 yrs old, I had arthroscopic surgery for torn meniscus on my right knee. Not long afterwards I developed neuropathic pain in both legs that became so severe I could not bear weight & was wheelchair-bound. After a lot of physical therapy and medication, my legs improved, but I still get episodes of the neuropathic pain particularly if I am under a lot of stress, which I am currently. I am taking Gabapentin (Neurontin) twice daily, which does help. I also find that a cold pack helps to ease the burning sensation. Have you tried a cold pack on your feet?
I wish you the best of luck and a quick recovery
Gen x
jane75220 Gennymac
Posted
I have never heard of this happening before? Did you have a local or a general anaesthetic?
Gennymac jane75220
Posted
Yes, it was due to the surgery. I had a general anaesthetic. I was told at the time that this can happen occasionally as a result of "insult or injury" to part of the body.
jane75220 Gennymac
Posted
Iwan12345 Gennymac
Posted
Hi Gennymac, I am new to this forum. Your story sounds very similar to mine. When I was 36 (7 yrs ago) I had a routine knee arthroscopy on right knee to remove torn cartialidge.About a week later, my quadriceps/ thigh muscles had completely wasted away. Then gradually I started getting severe aching pains in my groin, foot and front of knee. These symptoms remain the same today but about a year ago I also started to experience sciatica like symptoms with severe pain in buttock when sitting down. I also have hair loss around my knee. I have great difficulty standing up and walking and am severely depressed. I take duloxitine and pregabalin but it's difficult to say if they make any difference. I am just about hanging on to my job. I am office based but even when sitting down I am in excruciating pain. Any form of exercise results in more pain. I saw on one of your earlier posts that you had attended a pain management programme. How did this help? I have had numerous mri's and nerve conduction tests but no conclusive diagnosis. I have more or less accepted that I am going to have to live with this (peripheral neuropathy, neuropathic pain, regional pain Syndrome.) for the rest if my life. I was thinking on whether I should ask my GP to refer me to a pain management clinic.
Thanks
Iwan
jane75220 Iwan12345
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Iwan12345 jane75220
Posted
jane75220 Iwan12345
Posted
wan Have you googled the side effects of Nitrous Oxide and other anaesthetic gses. Nit oxide can cause Vitamin B12 deficiency which gives rise to peripheral neuropathy.
?Has anyone checked your B12 levels or Vitamin D, folate, ferritin, folic acid, iron profile, haemaglobin ?
?If you have an absorption problem these vitamins and.or treatment for anaemia can be given by injection. Magnesium is usually prescribed .
Iwan12345 jane75220
Posted
I have had various blood tests in the past (although over a year after the operation) with no issues noted but I do not know if b12 levels were tested. I will check with my doctor.
Maybe I should try taking vitamin b12 supplements. Nothing to lose I guess?
jane75220 Iwan12345
Posted
If u take B12 prior to testing it will skew the accuracy of the results.
It is highly unlikely that anyone has checked your B12 or vit D levels.
Have u heard of the pernicious anaemia society?
The guidelines show that if you are experiencing signs and symptoms of vitamin deficiencies that they have to be treated.
jane75220 Iwan12345
Posted
I assume you are in the US/
If you have to take BVitamin D3 then you are advised to take B12 alongside it because D3 can exacerbate the burning pain bcause it depletes the bodylicver of B12.
If prescribed D3 you should be monitored for a few weeks to check your calcium levels. A bone profile needs doing this consists of a phosphase, calcium, parathyroid hormone and vitamin d level.
Have u been checkd for osteoporosis?
Has a nerve conduction test been done?
Thyroid and testosterone levels are normally done .
Iwan12345 jane75220
Posted
Jane, I am in the UK.
I will ask my doctor for blood test to check d12 and d3 levels. I had a look at the symptoms on the pernicious anaemia website. I do not really have the symptoms that are shown on there.
i have had mri's on almost every part of my body (including knee, spine, brain, foot) and all clear.
I have had 2 nerve conduction tests. One specialist said there was nothing wrong. The other specialist said there were problems with L and S (despite mri being clear).
jane75220 Iwan12345
Posted
I suggest that you go back to your dr and discuss all this with him .
Physio is useful with L and S problems and can do a full assessmentof your back.
Good luck.