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Neuropsycology

Posted , 5 users are following.

jane68156
jane68156

Has anyone been sent to a neuropsycologist!!! After living with ME for 16 years yesterday I had an apointment with one. I have all the usuall symptoms plus those specific to me, lack of speach, balance, jerks, luckily not depressed. I walked in with my stick smiling and relaxed, came out feeling as if the last 16 years had all been a lie. They tried to change what I was saying and sat smiling at me as if I was mad!! They did not know me or even try to find out about me

3 likes, 8 replies

8 Replies

  • GeorgiaS
    GeorgiaS jane68156

    Posted

    Then ask for a second opinion? I've been though so many doctors to get an understanding one and it took several years to get a diagnosis from an ME consultant. I've never seen a neuropsycologist though so I don't know how that works. I think we have to fight for recognition of this disease.

    All the best with it! razz

    • jane68156
      jane68156 GeorgiaS

      Posted

      I totally agree with you. I have been diagnosed with ME several times over the years, but as we know because out symptons donf fit into their boxes, somebody suddently decided that it migh not be ME!! I am very open to other treatments, but feel that they are trying to look for something in my past to pin my symptons on! Obviously the virus I had in the begining wasnt enough!! At least my GP is great
    • jane68156
      jane68156 GeorgiaS

      Posted

      Hi, I totally agree with you. I have been diagnosed with ME several times over the last sixteen year, but someone has suddenly decided that it might be something else, only because my symptoms dont fit into their boxes! Obviously the virus I had in the begining wasnt enough for them, they are now looking for some other trigger!!
    • GeorgiaS
      GeorgiaS jane68156

      Posted

      I don't understand them because ME hits all kinds of different people of all ages, including previously healthy people, perhaps anyone could get it under certain circumstances.

      Shouldn't they be focusing on research and treatment for us all!

  • andrew22534
    andrew22534 jane68156

    Posted

    Really sorry to read this, i think Neuropsychology can help us if used correctly but all they want to do it seems is blame the mind for the illnes - American work does seem to now be defining this as a mitochondrial illness whether viral plasmid or something else However it is not a mental illness!!!! what annoys me is the mind is a very powerful tool and could be used to help us cope a bit better with our illness (perhaps) So to have people say its all in your head, for me, is a bit of a red rag!!!! I would now be inclined - if i had been in your shoes, to send in to my GP and them asking them all to write back explaining why American research is showing this as a mitochondrial illness / disease why do they think that the American redfinition is wrong....however be positive and keep trying...
  • JulieBadger
    JulieBadger jane68156

    Posted

    Sorry you had a bad and useless time.  Each time we get our hopes up that someone can help us.  When they don't believe us it really emotionally hurts. 

    The only thing is to keep hoping and keep trying.  If we don't then we lose faith that we can be well again.

    Keep strong x

  • angela85346
    angela85346 jane68156

    Posted

    Hi Jane I'm waiting for an app for neuropsychology don't hold much hope I'm just out of hospital after 4 days with pressure in my head and balance problems another c t scan which is always normal but they have sent me home telling me I'm ok so angry as u no your own body I'm now awaiting app form Southern general once again but don't hold much hope from them either Angela 
  • bronwyn97278
    bronwyn97278 jane68156

    Posted

    Yep Jane;  been there too....however, it wasn't a Neuropsychologist that I saw, but was referred to a Pain Psychologist....and yes, he did the same....treated me like i was a Moron....told me that my pain didn't exist (in conflict to the Rheumy who had diagnosed and referred me to him)....I returned 3 times, but after feeling MORE angry, and confused, didn't go back.  I found myself a Psychologist who specialized in Fibromyalgia/CFS and she was Wonderful....just let me talk myself silly...let out all my emotions/feelings, and then began to give me Coping Mechanisms...one important one being "to let go of the past"..which to me, was learning that I needed to move past from the person I used/wanted still to be, and accept/treat who I am now...."look after me" firstly, and then do what I can (what my health lets) for others.  I still find it hard to say "no" to immediate family (daughters and son, husband) but like as just now, "told my son, to Back Off"..he is being a bit of an egg-head at moment.....so do not give-up on "finding" the right person to help, for I am sure you will find someone too....go onto Google, and research, talk to their Receptionists first, as they are usually an indication of what their bosses are like...if welcoming and warm, then their bosses usually are too.  Good luck....Bron
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