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neurotin side effects

Posted , 4 users are following.

kay05402
kay05402

I am beginning to think doctors should try medications they prescribe. This drug was aweful of course maybe 300 mg too high to start on but people have to work and try to deal with terrible side effects. New drug of choice for pain management. I took four days and felt like was coming unglued. Will never understand gonna feel worse before feeling better scenario. I will deal with the chronic pain before I will feel worse. Not to mention I had to pull out of the dr. What was he treating. Very vague answer.

0 likes, 20 replies

20 Replies

  • suzanne76172
    suzanne76172 kay05402

    Posted

    My son is prescribed 300 mg @ nite to sleep only just talked to my bro he had probs with his feet long before he started taking gabapentin. Don't know the best decision in this case.

    • joy1953
      joy1953 suzanne76172

      Posted

      When you say your brother had trouble with his feet long before he started taking Gabapentin do you mean tingling, pins and needles and the such like? And is he taking statins?
    • marie89364
      marie89364 joy1953

      Posted

      I started Gaba pre and post surgery. Was on it 14 mnths. Am off it 6 weeks . Was given it originally for nerve pain. Both pre and post surgery I have had tingling, pins and needles in my feet and legs. Even though I'm off it now I still have these annoying tingling. I was only taking 200 mg before bed. It's hard drug to get off. I was detoxing for 2 mnths. Had terrible side effects. Reason I decided to go off it was because of the blurred vision. Thought I was going blind. Now that I'm off it, my eyesight is back. Pain or no pain I would never go on that stuff again.

  • kay05402
    kay05402

    Posted

    Has anyone had a good experience or ideas on what type doctor for persistent tingling and  chronic foot pain. Which I beleive my have worsened a existing issue due to chemo and radiation treatment. I started experiencing different type symtoms while in this treatment and just can not get help. I have to work which is becoming more difficult. Any suggestions would be appreciated. Pinging to different doctors is getting frustrating. There are obvious changes on Mri s.
    • joy1953
      joy1953 kay05402

      Posted

      Hi. If you are in the UK you must visit your GP and you must be assertive. I too had chemotherapy and suffer tingling in the feet. Immediately thinking it must be the chemotherapy to blame I visited my GP who contacted my haemotologist, he was responsible for my treatment. We were told that as it was two and a half years post treatment and I had only had 3 rounds of chemo it was unlikely. I decided to do some online research and discovered that there was a strong possibility that the statins I was taking (Atorvastatin) were responsible for the tingling. The statins went straight in the bin! (It is not necessary to be weaned off statins). My GP is totally supportive so you need to discuss this further with your doctor. If you feel you need to speak to a doctor who specialises in these problems your GP needs to refer you to a neurologist. I have an appointment with one. Hope this helps.
    • kay05402
      kay05402 joy1953

      Posted

      Thank you. I did not have statins though.  Had 6 chemo treatments. Daily radiation for 6 weeks Monday -Friday to pelvis area.  After about 2 weeks began to have strange symptoms. Trouble walking and cramping lower abdominal area . These did ease up somewhat but for over a year now same feeling and getting worse. Been told pain management which I tried. And been told orthopedic or neurologist. I do beleive those treatments did something to cause my problems.  The pain management did epidurals to several areas which made worse..That's when put on neurotin which made worse. 

    • joy1953
      joy1953 kay05402

      Posted

      I'd avoid neurontin like the plague! Having read the posts on this site I immediately decided to wean myself off it! Vincristine, used in chemotherapy is known to cause peripheral neuropathy and the fact that you had six rounds of chemo would suggest to me that this is a likely cause of your problems. My radiotherapy was on my neck which had a whole different set of side effects to those that you have. Try and get to see a neurologist, they may be able to help.

    • kay05402
      kay05402 joy1953

      Posted

      I guess it works for some. But I did not like it. People also say takes some time but I just can't feel worse.  And I suppose my next stop will be neurologist. As there is diffinate nerve stuff going on. There has been changes noted in mri's after those treatments. Just no one will say the treatments could be the issue. Radiation doctor keep saying not his radiation causing  Problems he has since been fired . Alot of complaints on him. Spent a whole 2 minutes talking to me each time.

    • joy1953
      joy1953 kay05402

      Posted

      What hospital did you have your radiotherapy in?
    • joy1953
      joy1953

      Posted

      I'm in England. My cancer treatment and radiotherapy were first class. God bless the National Health Service. Good luck with your health care.

    • marie89364
      marie89364 kay05402

      Posted

      Kay, do you live in Mississippi ? Iive in South Carolina. Most on this site live in UK.
    • kay05402
      kay05402 joy1953

      Posted

      You are lucky and thank you for your input.
    • kay05402
      kay05402 marie89364

      Posted

      And I suppose medical care there is much different seems like.
    • marie89364
      marie89364 kay05402

      Posted

      I don't know if it's that great. I get off Gaba 2 mnths ago was on it 14 mnths. Withdraw was a nightmare. I was so sick. Still have tingling and sometimes pain in legs and feet. My primary Dr is a nice guy but doesn't know much about withdrawing from Gaba. He's on it himself. If I hadn't found this web site I don't know what I would have done. I am very grateful I did and was so blessed so many people reached out to help me.

      Marie

    • kay05402
      kay05402 marie89364

      Posted

      I am glad I found this also.  I was not on long enough to go thru withdrawals thank goodness. But others have said it's hard to come off of.

    • marie89364
      marie89364 kay05402

      Posted

      I was only on 200 mg taken at night. Am glad you weren't on it long.

      Take care of yourself

      Marie

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