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Never ending problems

Posted , 9 users are following.

jon54193
jon54193

The pain never ends, results come back clear and everyone around me thinks I'm complaining about noithing.....I need help, I need a diagnosis, I'm so tired of this.....doctors keep telling me it's a functional problem mixed with fybromalgia, excuse my french but BULL**IT! Not sure what to do next but one thing is for sure, I can't live teh rest of my life like this...

 

1 like, 168 replies

168 Replies

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  • jon54193
    jon54193

    Posted

    Maybe we need to accept the CP and accept that is this is it....
  • Gem1384
    Gem1384 jon54193

    Posted

    Right I'm gonna have to post on here or in gonna have a break down. I suffered yesterday in terrible pain all day. All in my epigastric region across my left and right sides and all over my upper back. I felt awful. This morning I woke up severe pain on right side (assumed gallbladder), feeling really sick. Eventually the epigastric pain came on. I've just been to the Drs. He diagnosed nervous stomach and prescribed onperazole. Which at this point I'm willing to try again! But he said and I quote "you are not tender in your gallbladder area" so what the f*%k is going on then!? I was on omerazole for 6 months and the pains continued so I stopped them! I hate hearing it's not your pancreas!! Just because my scans are normal! Surely my pain patterns show you it could be my pancreas?!!! I've never been in this much pain/discomfort with no help in all my life! Feeling so down at the moment! sad
    • Ruthie49
      Ruthie49 Gem1384

      Posted

      Oh Gem, I don't know how to reply as I'm in tears myself this morning with worse diarrhoea, gut spasms and the tight cramping under left rib, though it's spread to my right side too now. I'm just stuck on bed/sofa wondering if/how this will ever end.

      'Nervous stomach'?! I just don't buy it. My GP was telling me this was IBS for months - rubbish! I know the difference.

      Sorry, not meaning to depress you more. It's so hard to keep hope alive but we must try. How are you managing with the children? All I can do is offer you my empathy and hugs, you are not alone. We WILL get answers one day, we have to believe it.

    • Gem1384
      Gem1384 Ruthie49

      Posted

      Hi Ruthie,

      Thank you for replying even though you're suffering too. I really wish we could all be sorted. I'm sorry you are in pain again today. I've never been so scared to try and eat in all my life 😢

      I'm coping ok with the kids they amuse themselves as much as they can but I feel like I'm missing them grow up as I'm too wrapped up in my own world of pain and worry.

      I need today to be a good day! 😢 x

    • Gem1384
      Gem1384 Ruthie49

      Posted

      Hi Ruthie,

      How are you doing? Are you feeling any better? xx

    • jon54193
      jon54193 Gem1384

      Posted

      I think I'm in bad trouble - the pain excerated 1000% yesterday - I've been in bed for 20 hours now, can hardly move. The front, under my ribs is burnng , almoist stinging! It's hell..back pain, neck pain, numb legs, hands, cant eat....wtf!

      Saw another doc on Friday who said he thinks its an intestines issue! Not convinced one bit....

      Hope you guys are ok...

    • Gem1384
      Gem1384 jon54193

      Posted

      Sorry to hear you're in bad pain. I don't know what to suggest apart from go to a&e. Your Dr will only be able to do so much. Are you keeping yourself hydrated? Did the dr on Friday give you anything for your intestinal issues?

      I really hope you get yourself sorted!

    • jon54193
      jon54193 nataliefranc

      Posted

      Still in bed, bloodwork taken Friday came back 100% clear...

      A different doctor has suggested an organ cleanse and that it's not pancreatic as bloodwork would show something! 

    • nataliefranc
      nataliefranc jon54193

      Posted

      It's so frustrating isn't it. I really do hope it's not pancreatic and your blood work being clear is a good sign but doesn't help the issue that like a lot of us we still don't know what's going on!! Sometimes I'd rather something was found so it could be treated and at least I would know for sure instead of thinking maybe I actually am crazy!

      A little annoying that docs still don't seem to realise cp doesn't always show in blood work when advanced!

  • sunshine22
    sunshine22 jon54193

    Posted

    Hi Jon,

    I am so sorry to hear of your struggle with this. I have been there with limited answers from doctors and no results. 

    This is what I should do if you havent already: 

    1) Check your blood type - and find out what FOODS you should eat that is BENEFICIAL to you. *Also make a journal of what was already identified of issues and avoid those or monitor later on once you changed your diet. 

    2) Speaking of a keeping a journal, you need to write a detailed daily diary of everything you have eaten that (a) caused your symptoms to worsen during the day (b) what food or drink you consumed that lessons those symptoms or you felt normal if only for awhile. (A herbalist mention to me about that we should look at what foods are in alignment to our blood type that is the connerstone in filtering throughout our bodies).

    3) Look into your urinary plumbing to review that is the initial infection or malfunction and review natual herbs to take and measure the difference because any symptoms of such indicates those organs as an initial issue.

    Basically, I am learning it is all coming from our gut to what foods we eat and once we change the diet we should see positive changes, if not, then our internal organs are malfunctioning. 

    Also, it seems that your nutrients are not being properly distributing and more importantly back to the FOOD intake, your good/bad bateria in the gut doesnt seem to be in balance based on noted symptoms - which I have learned the nutrition is the key.

     

    • sunshine22
      sunshine22

      Posted

      Also, wanted to add, to remove all sugar and the many names that it is listed on food labels because that alone makes havoc on our hinaceabodies - by by creating other bad organisms that impact all other areas through the "blood" which travels to other areas. And everything antibotics are taken REMOVES our good bacteria, so your immune is low and need assistance. I suggest taking some Echinacea tea or the pill form, if by tea add some honey. And use Milk Thistle that is good for your system removing waste to help get out that toxins that seems to refuse in moving out. 
    • jon54193
      jon54193 sunshine22

      Posted

      Thanks Sunshine, this is for sure worth a look into...
  • jon54193
    jon54193

    Posted

    Might be a good idea to get some qualified pancreatic speacialists in here....
    • Gem1384
      Gem1384 jon54193

      Posted

      We just need someone to give their time up for free! Lol!

      I've often thought it a good idea! There are quite a lot of us with the same symptoms that all get swept under the carpet or labelled with the same things!

      Hope you are doing ok Jon

    • nataliefranc
      nataliefranc Gem1384

      Posted

      Yes I've often thought I need to marry a doctor that would dedicate his time to get to the bottom of what's wrong with me lol! Not much chance of that unfortunately!
    • jon54193
      jon54193 nataliefranc

      Posted

      Haha! I'm going to study to become a pancreatic professor myself, it's the only way to get a diagnosis. How ridiculous! wink
    • nataliefranc
      nataliefranc jon54193

      Posted

      Yes it does seem that way unfortunately!! I'm fed up of knowing more about cp than my GP! Perhaps they should study from google and these patient forums and find out actual real peoples experiences and symptoms rather than the text book ones!!
    • Gem1384
      Gem1384 nataliefranc

      Posted

      Yeah that would be nice! Maybe he could help us all! Lol! 😉
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