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Nevro, and my pain, no help.

Posted , 18 users are following.

ddry999
ddry999

my Nevro was installed in July, 2017, On the advice from my neurosurgery Doctor, he referred me to a pain specialist an he installed the Nevro H10. I have had 8 back surgeries over the last 3 1/2 years, the last ones January 2018 which L1-L5 was fused. I apparently have had a lot of nerve damage from the surgeries. in January 2018 I had to have the Nevro battery moved from my right side to the left side because it was laying on my 11th. rib and was causing a lot of pain. So when the fusion was done in January 2018 my surgeon remove the battery from my right side to my left side. now according to Nevro whentrying to program trying to program the unit There is a lead missing? so I guess another surgery to replace the missing lead. What next? The Nevro has not helped very much as far as I can tell. seems like they have been a problem after problem trying to get this to work as advertised, and with the high cost and the surgery you have to endure the thing ought to work. I have taken so many hydrocodone's people probably think I am a drug attic, I am currently on 15 milligrams of hydrocodone (3 per day) and I am still in constant pain, I have a stinging in my very low back over my left and right hip that feels like a bee is stinging me constantly plus a lot of low back pain that at times I just want to cry. so for those people that is considering having the nevro Stimulator uninstalled research it completely. you may save yourself a lot of pain and money. I have read where people were asking about charging the battery, yes you need to charge it daily I was told by NEVRO representative when it gets down to one light on the charging side it is not working. I was charging every three days but I was told that is incorrect charge it every day for the rest of my life or as long as I have it installed. question, is it worth it?

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  • Memaw2287
    Memaw2287 ddry999

    Posted

    I had the Nevro HF10 implanted in September, 2020. (The trial was successful a few months prior.) My spine is messed up pretty much from lower cervical to tailbone. The absolute worst area is in the thoracic. No back surgeries because two independent neurosurgeons recommended against it, saying what little they could fix was not going to give me enough relief to be worthwhile. (Fine by me. I really didn't want surgery but was desperate for pain relief.) After a few years of pain meds, PT out the wazoo, etc., I opted for a trial of the HF10. Things went well and my pain meds were reduced by half. The first few months after the permanent implant were really good, then the relief started fading. I have worked diligently with the Nevro reps and we've done 40+ different settings/programs. No lead migration, we've checked that. I'm done. Seeing Pain Doc later this month and the discussion will be about removal of the unit.

    There has been no problem in communicating with the rep, although my rep has changed a few times. Your doctor needs to know about this and should be willing to intervene.

    Basically, if I am sedentary, I have no pain. Being on my feet causes compression in the spine and the pain become intolerable. Right now, I'm on 150-300 mg tramadol daily, depending on what I am doing that day. It's not enough, but it gets me by.

    Some folks have had great luck with the implants, but I am not one of them. Wishing you the absolute best.

  • meghan007
    meghan007 ddry999

    Posted

    hi all,

    sorry to hear so many of you are also struggling.

    I had the Nevro HF10/HFX device implanted a year ago for chronic low back pain and have had terrible pain around the leads since implantation. im wondering if anyone has experienced something similar to this and what you did about it?

    the pain is right around the leads, like a terrible pressure. its at its worst when i lay down, but can flare for no reason at all. i often feel like my lungs are being squeezed and its hard to breathe. the device is actually working well for my low back pain or we would have removed already. I've had 4 medial branch blocks with some relief, an epidural that did not work, trigger point injections, massage therapy, accupuncture that all did not work (massage caused flare ups). Sometimes the pain radiates to my abdomen.

    im also having issues with Nevro, changing my reps, not returning my calls, overall just not helping at all.

    I felt like the stimulator was my last hope so I dont want to give up on it, but the pain is unbearable.

    thanks,

    meghan

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