Nevro hf10 spinal cord stimulator

Posted , 30 users are following.

I just had a trial implant of this device after hearing tall claims by the company. I was under the impression that the company would work closely with me to find the optimal settings. Even in this trial period I seem to be chasing Nevro staff with no success instead of being the other way around. Is this a precursor of what to expect from Nevro. Are they just interested in selling or do they care about their patients? Any experience ? Please help me.

0 likes, 41 replies

41 Replies

Prev
  • Posted

    onlyraj Nevro don't interact with the patients very well at all....I had my stimulator inserted in jan 2020 relatively new patient ..I have seen them 3 times in a year .....oh I kown its been difficult with this covid 19 but I just think they hide behind this and make excuses not to see u . I hate the stimulator ..but what alternative have I got its either swallow a load of pain killers ...like everyone else or put up with this ..and try and get on with life...its like my later mum used to say (u made your bed now u have to lay in it) yes its stinks ..but nobody gives a ????. I'm not young anymore not that I'm old ..just let's say I've more looking back than forwards. Stay with it and make as much noise as u can ..someone will hear you eventually.... Patricia.

  • Posted

    onlyraj Nevro don't interact with the patients very well at all....I had my stimulator inserted in jan 2020 relatively new patient ..I have seen them 3 times in a year .....oh I kown its been difficult with this covid 19 but I just think they hide behind this and make excuses not to see u . I hate the stimulator ..but what alternative have I got its either swallow a load of pain killers ...like everyone else or put up with this ..and try and get on with life...its like my later mum used to say (u made your bed now u have to lay in it) yes its stinks ..but nobody gives a ????. I'm not young anymore not that I'm old ..just let's say I've more looking back than forwards. Stay with it and make as much noise as u can ..someone will hear you eventually.... Patricia.

  • Edited

    Hi I am currently trialing nervo and I have found some great relief but they are removing the test kit on Wednesday can anybody tell me if they have done the trial if there pain returned immediately on removal

  • Edited

    I had the HF 10 device implanted in November 2018 and am now eagerly seeking a neurosurgeon to remove it because my PCP believes it might have now "infected" my butt cheek as it's inflamed and my lymph nodes are swollen in my groin. I stopped using the device after a year because I made lifestyle changes that negated my need for the SCS altogether - I stopped carrying a wallet on me/in my pants/shorts creating stress on my sciatic nerve. I was initially told I would have to wait the life of the device before it could be removed (10 yrs) but I told my doctor that it's coming out now, whether NEVRO likes it or not! I would not recommend this brand for their customer service and arrogance!

  • Posted

    Exactly the same experience. Decided against permanent installation.

  • Posted

    I would like to say that I could only give praise to Catherine and Eric who has stayed in contact with me help me through the trial period and now help me through when I have the spinal cord stimulator inserted into me. I have had over 20 operations unfortunately. I have been through a fair bit of pain in my life I have had my right heel cut also moved over I got screws & rods in me I was told that it would cut the burning of my feet. I have managed to get off my Nupentin 300mg tablets. I was taking 1500 mg a day I went up to 2200 MG unfortunately I became very dizzy, I could not handle this amount.

    I would recommend the device it is still winter over here so I am hoping it will still help me when it becomes summer I’m not taking as many Oxcodone hydrochloride 10mg as I previously was before having the spinal cord stimulator put into me the last tablet was about three months ago and that was after the operation. I am still having Buprenorphine 10mg per hour. The only recommendation I would like to make that when you see the specialists, they advise you upfront what you are going to be able to do after you had the spinal cord stimulator put into you and how long you must wait until the next right hip operation. This I must admit I find frustrating.

    I do not blame the staff because I do feel it was up to the specialist to advise me of everything that I would be facing in the future. Including carrying information just in case I was unconscious & could not tell anyone that I had a spinal cord stimulator inserted into me.

    I would as I said highly recommend the spinal cord stimulator, I am hoping that I will still be in a lot less pain come summer. I did not believe living was worth staying alive the only reason I really stayed alive was because of my daughter. I am now thankful because the spinal cord stimulator is just helping me to cope a lot better than I had ever hoped so my recommendation if you are going through what I call hell pain is no friend. Please think about the device believe me I am not a person that would say very much to anyone how much pain I am going through because they say men do not know what pain is. Believe me if you love your partner and care about them, I do not say much because you do not want to upset them, and I found it extremely hard to say anything to doctors of the amount of pain that I am really going through because I was saying to myself, I do not think they would believe me. My wife would come and say speak up for yourself tell them the truth even then because of what I previously had been said to me, I was very guarded or what to really say. I am still that way because I do not want to look weak in front of people’s eyes all have people say he does not know what pain is like all doctors think that he just could not be going through that much pain. Please believe me I know what pain is. I stay up to 2 PM sometimes I cannot sleep.

    I sleep in my own room away from my wife so I will not l keep her up or wake her up. Please think about the spinal cord stimulator it just might save you from a lot of pain like it has helped me I just could not imagine such a little device helping as much as it has its worth going through my name is Bruce.

    I am hoping that you will find that I am telling the truth and that you will be thankful that you tried the spinal cord stimulator, and I am sure that you will find the staff very friendly and helpful I have, and I am sure you will have a nice day.

  • Posted

    This HF10 probe was implanted for me on May 20th and June 1st here in munich and I can only say ...the operations themselves went absolutely smoothly but the support from Nevro or their representative ... absolutely unprofessional and ineffective !

    Just one example ...we ( the Business Development Manager from Nevro and i ) try the combination, like in a guessing game, but

    a) either the lady has absolutely no idea about her job or

    b) Nevro wants to keep you in a kind of dependency.

    Conclusion so far ... they made their money but the support was amateurish.

    Clinical studies that prove the effectiveness of the HF10 probe are out there. But ... the support from Nevro certainly didn't play a role 😏 because THIS is an absolute stress factor ...

    And so far the opposite has happened .... I am now taking more and stronger opioids, the "relieving posture" gives me severe pain in the cervical spine area again and the entire leg muscles are cramped.

    And THAT all in the test phase (= no unnecessary movements, do not lift heavily, do not sit for a long time ...) I wonder how this should be when I go back to my everyday life? ??? **

    I am already wondering whether I should hire a lawyer .... does anyone have any experience here that they can share?

  • Posted

    I had a Nevro Senza put in after a wonderful trial in October 2020. I had it removed nine months later (two weeks ago). It was a horrible experience. Some background - ankylosing spondylitis and a failed iFuse surgery. Tried the Nevro to cover up constant pain and it added more pain through over-stimulation and excruciating neuropathy in lower legs and feet. The pocket where the device was placed was director over the SI joint that was the source of my original pain. In addition, the lead anchors at T10 were extruding (pushing out) from that area. The reps did not know how to advise throughout the experience and every reprogramming (5 of them) was a confusing, strange "fix" that never worked. Would not advise this stimulator. It's huge, uncomfortable and the "treatment" caused additional pain upon original pain.

  • Edited

    i folks i had the HF10 implanted and was told that it wasMRI safe but I found out that is conditional on a machine that settings can be set especially for this implant. is been he'll i can't walk barely in my house and I'm considering taking this device off it didn't help.me at all. I saw the hospital bill for outpatient surgery 134. thousand dollars lucky I'm a us army retired with tricare and Medicare but I do not recommend this thing as of now there is no hospitals in my town city that are able to give ne an mri due to settlings I'm desperate suffering from PTSD. DEPRESSION ANXIETY FROM COMBAT IN iraq and the accident in combat that caused my mayor disability. I called NEVRO and he told me that is mri safe conditionally in other words a machine that can setting be set for the mri, so far zero help from the technician who told me that it was MRI SAFE BUT DID NOT TD ME THAT IT REQUIRES AN MRI MACHINE THAT SETTINGS CAN BE CHANGE . NO LUCK PAIN 24/7 NO RESPONSE FROM THE NEVRO CORP IN CALIFORNIA. IF YOU ARE GOING OR THINKING TO GEY THE HF10 IMPLANT GET INFORMED IN TOTAL ABOUT MRI. BE SAFE L9VE YA'LL 🙏 ❤️

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.