New and just wanted to hi to you all.

Posted , 4 users are following.

My names Julie and i am 54, 55 next month!! and had FM/ME now for almost 5 years after a very nasty viral infection which left me bedbound for almost 2 years.

I have had all the symptons since 1976 when in a very serious car crash which left me with neck and back injuries and was always being refered to anyone and everyone and almost lived at the hospital for years.

I am now managing my symptons as best i can but its taken me a very long time to get to this point.

Just wanted to say a big hello to all and look forward to meeting and chatting as i am mainly housebound now and would love to meet new friends who understand how we all feel on a daily basis.

Julie.

0 likes, 7 replies

7 Replies

  • Posted

    Hi Julie

    Sorry to hear about your situation with getting me/fm but pleased you have come on to the site to hello and make some friends who can fully understand how you are feeling. That is what it is all about as we can keep each other going and positive! :lol:

    I am Tess or Theresa and I am 52years old and was diganosed in June this year with Fibro. Although I had been going backwards and forwards to the doctor for neary nine years. I also have OA in several of my joints as well. You may have read my rantings on the site as I like to talk and support people to. I know since coming on it has really helped me to deal with the day to day changes of Fibro.

    There are a lot of other friends that come on that I talk to as well. It must be hard on you with being housebound so this site will make a big difference to you!

    Well hope your pain isn't too bad at the moment although it is sunny here it is cold!

    Will catch up again with you soon and see how you are!

    Love Theresa xx

  • Posted

    Hello Julie,

    My name is Lindy, Im 42.

    Im new here myself. Not sure if it is FM, undergoing various tests at the moment.

    U sound like youve been through the wars chick. I agree with Tess, it must be hard on you not being able to get out.

    I sure hope we can all make some friends and share a few laughs/tears along the way.

    Take Care

  • Posted

    Sorry Lindy been calling you skye from your user name. What test are you having to find out if it is FM. I was eventually diagnosed by a rhuematolgist as all the bloods came back ok. He checked for pressure points over the body. There are 18 in all and I had 12 and think if it was over 11 you then it was FM.

    How long have you been feeling unwell. It had taken me about nine years to finally find out what is going on. I seem to have lots of different illnesses after I had thyroid cancer and just put it down to my immune system being low after radio iodene treatment. I was feeling really tired all the time and as I am on thyroxine as no thyroid gland put it down to that. Although my levels were ok. I then started with irritable bowel, then irritable bladder and at the time didn't no that these symptoms alone with the tiredness could be FM as never heard of it before. I went on to have joint pains and saw gp who sent me to see Rheum and said I did have OA in my toes. Since gone on to have it in more joints and then was getting different aches and pains in muscles and other parts of body that I couldn't account for. Finally it took a change of seeing a new doctor who was willing to listen to me and was diagnosed in June this year with FM.

    It seems to take so long sometimes for different illnesses to be picked up on! I know there are a lot of autoimmune diseases with very similar symptoms but things need to be acted upon quickly.

    Well hope you are not in too much pain at the moment. My times seem to be first thing in the early morning and again in the evening lol :cry:

    Have a good day! :lol:

    Love Tess x x

  • Posted

    Hi Tess,

    Don`t worry about it....I don`t think I disclosed my name before.

    Its just the blood tests at the moment. Bout 10 different tests requested, including FBC, B12 etc....as anaemia can cause similar symptoms. But if they come back clear, then the GP will have to do whatever it is he has to do (ie: refer to Rhuematologist). Coz something just \"ain`t right\".

    Take Care

    Lindy..x

  • Posted

    Hi Lindy & Jules

    I also had anaemia before I was diagnosed with FM for about a year so was probably difficult for the doctors to check me out lol! Had to be on iron tablets for six months at one point. Off them now. :lol:

    Yes something will have to be done if your bloods all come back ok. Keep going at them until you get an outcome lol

    Hi Jules hope you not in too much pain today and got a decent sleep. I had a bit better sleep last night but still feel a bit achy today. Going to a 30th Birthday Party tonight at my sister-in;laws house. Its a 7o's theme so dressing up lol. Not sure if I really want to dress up but hey give it a go! Hope I last the night out.

    Take care both of you

    Love Tess x x

  • Posted

    Hi Linday and Jules

    How are you both feeling today! I hope you are both not in too much pain with the damp weather. :cry:

    I haven't felt so good today had a headache and felt quite tired. Not sure if fibro or new tabs taking for thyroxine. Or possibly both! Its so hard to know what is causing what when you have several things going on.

    Well catch up again soon.

    Take care :lol:

    Love Tess x x

  • Posted

    Hi linda just want to welcome u to this site... i just want to say there is a lot of lovely people on here.. who really help each other on here.. so will catch up with u soon xx di x

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