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I have a few questions if anyone can help? I have had headaches and neck pain since I was 16 I am now 24 and nothing has changed I live with pain daily I get numbness in my hand and my fingers tingle. I just myself done research and found most of the symptoms of fibromyalgia I have I almost cried reading about it because I have gotten no where with doctors in 8 years not one have diagnosed me. One told me maybe I was on a nerve causing the neck pain and numbness and tingling they gave me mussel relaxers which didn't help and sent me to another doctor they did a brain scan because of the head aches it was normal sent me to another doctor I am screaming to these doctors my neck is where is all starts. The next doctor was a neurologist I told him everything he NEVER touched me he looked at me and said and I quote " Do you know how many people I see a day with head aches" in which I say "my neck will hurt before the head aches" he sent me on my way with nerve blocker which again didn't work. All of this was over the 8 years until I got to the point I would just give up for a year or so and live with the fact I would never get help then about 3 years ago I started having high blood pressure only with the pain. Now the doctor I am seeing says he has "no magic pill for me" and said " I hope non of the other doctors have given you narcotics" which they haven't and yet again sent me on my way with blood pressure medication. I want them to stop putting me off on another doctor I want a diagnoses I want test I want answers. Could it be fibromyalgia I would love to hear from those who have this to see if it could be what I'm dealing with or should I move on to the next self diagnosis.

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11 Replies

  • Posted

    Of course you want answers, these symptoms are all too common and could be numerous things. You have to stick with doctor and go to every test he feels you need, you will get there I promise
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  • Posted

    Hi Meg, very difficult to say if it could be fibro, but doesn't sound typical. So sorry the neurologist was so unhelpful. Ask your GP to refer you to a rheumatologist, and/or to a pain clinic. Good luck Honey xx

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    • Posted

      Do you know, that's happening more and more, doctors not doing their job right, I'm sick of all the vacant looks and, 'oh well' we will have to try and get by, maybe if still the same, next time, just get a job whal

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  • Posted

    Has anyone X rayed you or offered you an MRI scan to check for damage to your neck/spine if not ask the doctor for this as it is an excellent diagnostic test. Think back to when this started did anything happen in your life an accident any trauma anything at all no matter how small ? It does sound like you may have nerve impingement this would account for your description of symptoms. Go back to your doctor for further investigations is my advice, kind regards Harriet
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  • Posted

    Hi Meg, have you had a MRI done.? I think you need to get one to see if there are any issues with your neck. Also have you tried any other options other than a dr like chiro, massage or Bowen theropy? I wouldnt be so quick to lable yourself with fibro and i say this from experience. Get all other options ruled out first
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    • Posted

      No in 8 years all I have had is a brain scan, also I was also sent to physical therapy I walked out every single time crying I would cry in pain for hours after. I called my mom several times and her and my dad would have to come pick me up and drive my car I was in so much pain I couldn't. They sent me to therapy not having any idea if my neck may have an injury which from the start I though common since would be to make sure everything is okay before you go to pulling and twisting but I gave it a shot and after 9 weeks of going 2-3 times a week with feeling worse I quit going.

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    • Posted

      Yeah i am surprised the physio didn't ask for xrays at least to be done. You poor thing i know how you feel. I would be insisting on a MRI. 9 weeks is a long time to see no improvement sounds like your physio was just happy to take your money for nothing.did he/she offer any advice as to what it could be?

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    • Posted

      Like others have said an MRI would be good to start with. Did the physio person explain why you were having so much pain?  I would insist on a different physio therapist.  Have you got a sports clinic where you live.  Sometimes they are better at diagnosing these things.  Maybe a massage therapist would be good.  But for sure get that MRI.  Hope you get what you need soon!  Don't give up!

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  • Posted

    Hi Meg I see your in the exact same position as I'm in it's so frustrating isn't it!. I feel that doctors don't believe me when I say I'm in pain because I'm only 15. One doctor was looking in to see if I had mental health problems! All because he wasn't sending me for the correct blood tests! I hope you get things sorted soon X 

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