Edited , 7 users are following.
Anyone out there been on tocilimab or abatacept, after being on embrol for about 8 years , ( wonder drug for me ) my consultant decided it would work better with methotrexate, something I had been on many times but found I could not tolerate very well, sickness , fatigue and generally feeling YUK. So in her wisdom, she doubled my methotrexate dose to 15 mg per week as well as the embrol, which put me in hospital with bi lateral pnemonitis. In for 8 days, thought I was dying. After taking me off all meds whilst waiting to see respiratory consultant, this has been since early July, she has put me on predisnone, decreasing dose. Am in agony. Just had letter from resp consultant naming methotrexate as cause of lung problems, maybe on its own or in conjunction with embrol, so he has advised that I do not go back on any of these drugs. He has suggested abatacept, or tocilimab( don't know if I have spelled that correctly) brain freeze today, so much pain! Embrol worked immediately for me, I just home one of these drugs will too. Any comments or advise greatly appreciated. Had RA for 30 years, so no stranger to this condition.
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