New Born Baby Boy - Hypothyroidism - No Thyroid Gland
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Hi,
Our son Mason was born 3 weeks ago today and has been diagnosed with Hypothyroidism. I was at GOSH yesturday so he could have a radioactive iodine test and from what i could gather from the results on the screen he seems to have been born without a thyroid gland.
Can anyone please respond with any advice/input on what we are to expect in the next few years. Anyone with actual experience would be greatfull but any comments appreciated.
He has been started on 3mg thyroxine solution and had his bloods taken to check he hormone levels yesturday.
Looking forward to your response.
Richard & Jemma
0 likes, 6 replies
elaine_1
Posted
Guest
Posted
My son was born in 2000 and was found, after 3 weeks in the newborn unit, to have no Thyroid. This is no doubt a traumatic experience for anyone to go through. Fortunatally his Consultant is superb, and after the initial 6 weekly tests this has gradually been reduced to every 6 months, his dose now being 125mcg Thyroxine.
Although a little clumsy (some boys are anyway!) he is fine and developing well, and as far as his Consultant is concerned he is likely to grow up with no problems associated with having no Thyroid gland.
My advice to you is try not to worry. The fact that it has been picked up so early is very positive news, and as long as Mason takes his medication as prescribed you should have no issues.
I also think that you should explain to him as early as possible why he needs to take the medication and make him feel like any other child.
Hope this helps you both.
taiteilija MuM&DaD
Posted
I've also been told to avoid soy (sadly- I love soy!!) because it inhibits hormone uptake. I noticed I kept getting super grouchy and my doc asked if I'd been eating or drinking a lot of soy O_o so weird.
angela08755 MuM&DaD
Posted
QueenViktory MuM&DaD
Posted
Hi there, my name is Mattie. I am 20 years old, and I was born without a thyroid gland. Over the past few years I had a few troubles fitting in, paying attention in class and making decisions. When it comes to a person having hypothyroidism, we don't mature until an older age, but we really make up for it in our late 20s and early 30s. Just make sure little mason takes his Levoxothroine everyday at 7:00 am. Getting the right dose of his meds will help him greatly on his days to come.
barbara98940 MuM&DaD
Posted