1. Community
  2. Brain and nerves
  3. Epilepsy and Non-epileptic seizures

new consultant

Posted , 1 user is following.

Guest
Guest

Evening; july 2007 I experience my first siezure in 21 years, ended up in ITU, as I wasnt getting on with my consultant I opted to change but then I had another siezure six months later with much worse side effects, while waiting for new consultant I was passed from one to another, now I have recieved a letter from the phyciatric department as I had another siezure mid september and they stated on discharge notes I had a non epileptic siezure now totally baffled as I think they dont believe me! problem is I don't remember a thing about the siezures, had them all night the first night, even worse I may lose my job!!! Im on epilim and keppra was on phenytion but this made me very very ill; but they insist on giving it to me every time I have seizures anyone in same boat, would love some help feelin very low as off work until sorted out if I still have job that is? :twisted:

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    wow your experience sounds just like what i am going through. i had my first seizure when i was nineteen had a couple more and was diagnosed with epilepsy, then after having more seizures they said i had non-epileptic attacks?? confusing but i just sort of went along with it. after about three months of having seizures they stopped, then in august (8 months after my last seizure) i had another one but this time i didnt wake up i was put on a life support machine and taken to intensive care scary i no. then i had another one while driving and had a few more since had one in work so now not allowed to go in because i am a health and safety hazard apparently. Needed to see a neurologist but a long wait about 5 months so eventually gone private to see a neurologist for a second opinion and he now thinks it may be epilepsy, i just want it sorting out, got to go in hospital for a prolonged eeg in about 3 weeks so hopefully they will give me some answers and i can have my life back.

    during seizures i loose contiousness, bite my tongue or cheek, i am incontinent. i am confused when i wake up and i sleep for hours.

  • Guest
    Guest

    Posted

    Rachel1234 amazing i am now waiting for my mental health appointment cant believe they think Im crazy! I dont think they know what they are doing but in the meantime I may have lost my job!!! my family are all turned upside down with me being in and out of hospital and now they think its all in my head - been on the internet and I dont think I have non epileptic siezures just like you I have to sleep it off! is that what they do in non epileptic plus I dont suffer from anxiety or have any sress in my life and definately dont have a personality disorder and non run in the family!!! I am turning into a mad woman!!!
  • Guest
    Guest

    Posted

    haha i no i am going in hospital again!! in a week to have a prolonged eeg done a doctor has now decided that they may be wrong again!! but who knows. I suppose in a way non epileptic events are easier to get rid of once they no the cause, but i dont seem to be experiencing them. i really do hope they find out what is going on so i can return to work and get my life back on track.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.