New diagnosis
Posted , 8 users are following.
We've just spotted our 13yr old daughter has a odd shaped spine (wasn't obvious 2mths ago!). GP is referring her to an orthopedic Cons but has given us the 1st diagnosis of Scoliosis. The curve to us seems more severe than mild but isn't causing pain. She's an athletic 'young' 13yr old and hasn't gone thru puberty yet. We're keen to get the ball rolling immediately but as it is the NHS there's a waiting list. Should we look at going privately? Any advice would be most welcome. Anyone else been in a similar situation
0 likes, 9 replies
Jay91157 debbie87686
Posted
betty14688 debbie87686
Posted
I was diagnosed at 13 years old,or maybe it was 12.In school, they used to make you bend down and touch your toes, and they would check for a hump.They never found mine.I was sitting at the kitchen table, and my step sister asked me what i was hiding under my shirt,and I said "nothing"-Then she pulled my shirt up and yelled for our parents.I had a 56 degree curve,and had no pain-I was a gymnast.My concern is, if you see this with out these weird tests they give people in school, it seems pretty progressive.Puberty is a spurt of growth,so there is a high probability that once puberty hits, it will get worse.
I am the U.S.A.,I assume you are not.when you talk of going to a private doctor, I'm not sure of your economic situation,and if you do have the financial means to pursue that avenue, do it right, and come to the U.S.
As I offer all who are not from here,if you need a place to stay rent free while your child undergoes treatment, I always offer my home.It's a shack, but I'm a great cook!This country has its issues,but medical treatment is supreme here.
Now, if your child does have a serious problem,a progres and has to have surgery,it will be difficult for her to understand that for a time after surgery, sports are off the table.That was very traumatic for me.But, with your support, she will be O.K.-She may have to find a new passion, a new direction, and the great thing is life offers so many opportunities to be happy and succeed.
Best of wishes!
Hepclan debbie87686
Posted
Our 14 year old fighter was diagnosed 6 months ago and is now warns a Boston brace 22 hours/day. We paid to speed up the process rather than wait 3 months for an appointment on the NHS . Her next xray is scheduled for early April so we hope that at the very least there is no deterioration. She has a s shape spine but so far no pain thankfully. We also paid for treatment at a private physiotherapy clinic in London and she does exercises every day to strengthen her spine.
This is a long journey. Good luck
catherine_39957 Hepclan
Posted
we're in Canada and 14 yr old son in Milwauke brace for Scheuremann's. Same S shape but worse at top 68 degrees. Progressive for sure 2 xrays in 6 months showed worsening. They don't consider surgery here till min. 75 degrees.
We've had the brace for nearly a month now and so far so good. In fact I swear the boy is a full inch taller already! We go in a week for a 1 month in brace xray to confirm what so far seems good.
Was really hard adjusting first couple weeks but he's doing his time, he doesn't do excercises like he should however.
Here's hoping this not only works but lasts for them!!
Our thoughts and best wishes to you and your daughter.
Kelly271 debbie87686
Posted
I'm 19 and currently awaiting spinal fusion surgery for my S shaped curve. I live in the UK also.
I was put on the NHS waiting list last April via Musgrave Park Hospital in Belfast. Just a few weeks ago I received a phone call from Musgrave who advised me they're flying patients on the waiting list for surgery to the Royal National Orthopaedic Hospital in Stanmore, London because we simply don't have the machinery or surgeons to carry out the operation.
I met with the surgeon from Stanmore and the choice is now mine. I have been given the opportunity to decide when I want to go for surgery rather than waiting years on the NHS.
By the way, the NHS are funding this scheme and fly 2 family members over for free to stay with the patient. They're also accommodating family members in a nearby hotel.
I hope this helps.
Kelly x
JENNY1968 debbie87686
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Kelly271 JENNY1968
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That's crazy. Were you with Musgrave also? If you don't mind me asking, are you waiting for surgery too?
Kelly x
JENNY1968 debbie87686
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Kelly271 JENNY1968
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Kelly x