Posted , 17 users are following.
Hi, I am in New Zealand and was diagnoses 2 days ago with PMR. Wicked pain and stiffness and blood tests elevated. Started Prednisone 15mgs yesterday and had not a bad day but tired. Not a good night though and awake since 4am. I had not actually heard of PMR and I am a recently retired nurse and I did some research and found your discussion.
1 like, 22 replies
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lilian05079 jan_37704
Posted
Welcome to the PMR forum.
I have been off prednisolone for 11 months now and have been steadily getting back to normal after prednisolone therapy. There are lots of members on the forum who can give you lots of advice and information about PMR and prednisolone.....Your pain and stiffness should subside after a while give it a week or so and tiredness is part of the PMR/pred therapy.....and sleep patterns are disturbed due to our circadian rhythm that becomes out of rythm due to preds that suppress the adrenals and their effects on the hypothalmus.....my very best wishes to you jan37704....
jan_37704 lilian05079
Posted
lilian05079 jan_37704
Posted
The pain will ease up just give it a little more time for the preds to take effect. You only started the 2 days ago, i recall my pain was controlled after a week or so.....best wishes jan37704..
lilian05079 jan_37704
Posted
Sorry should have mentioned 2 days of preds is a wee bit early for your sleep pattern to be affected by preds...i hope your pain subsides soon...best wishes..
amkoffee jan_37704
Posted
Don't feel bad about not knowing what PMR is. I run into tons of people in the medical field who never heard of it. And in fact when I was in the emergency room after having a mini-stroke a nurse practitioner in training was in my room and I told him that I had PMR and he said "what neurologist made that up?" I told him I was diagnosed by a rheumatologist and then he insisted it was a made-up illness and just laughed and laughed as he walked out of the room. Because I had had a mini-stroke I couldn't talk very well and I had no feeling in my right arm either. If I had had feeling in my right arm and if I had been able to talk well I don't know if he would be alive today. Haha
celia14153 jan_37704
Posted
Michdonn jan_37704
Posted
Welcome to the PMR club, I had a hard time sleeping at first it took me a good two weeks for the Pred to give me relief. Each case and every individual is different. I do not reduce my dosage unless I am PMR pain free. I want as normal life as I can. I am active, but had to work to get there. Taper slowly it is not a race to get off Pred even at times you might want to.
Try not to taper more than 10% at a time. And look into DSNS method:https://patient.info/forums/discuss/reducing-pred-dead-slow-and-nearly-stop-method-531439
Good luck on your journey think positive and try to smile. 🙂
carlene22578 Michdonn
Posted
lilian05079 Michdonn
Posted
Hi Michdonn
Received the book this morning and have been reading it all afternoon it's soo informative. I have been doing some things right regarding adrenal fatigue but the book has shown me where i am going wrong. I will certainly follow the book and make adjustments. Also regarding type 2 diabetes i shall make some adjustments there according to the book. I'm looking forward to reading about all the other conditions in the book. Thank you sooo much Michdonn for details about the book. I'l keep you posted as to how i am getting on.... with my very best wishes to you and your dear wife..keep smiling, keep positive, keep up the good eating regime..bon appetite...:-)
lilian05079 Michdonn
Posted
Hi Michdonn
Robot being illogical again!..It was just to thank you for your info in private message. Got the said article today and it has shown me where i am going wrong on certain eating habits re adrenal fatigue and Type 2 diabetes.....thank you soo much i will keep you posted ..my very best wishes to you and your dear wife..keep smiling, keep positive!..:-)
lilian05079 Michdonn
Posted
I queried why my posts to you as to why they were moderated..and they have been re-instated...thanks again for your info..keep smiling..:-))
Michdonn lilian05079
Posted
lilian, you are welcome, I truly believe that a positive attitude is a great help. And that smile helps. Smiling 🙂
Michdonn lilian05079
Posted
lilian, I glad you got the book it has been a great help to both of us.
With a 🙂 Michdonn
christophe38948 jan_37704
Posted
Nice to see You in the Family of Prednisone. I suggest to read many opinions and you will build your.
Good Luck
CW
Rimmy jan_37704
Posted
Hello Jan
Welcome to this great forum where you will continue get lots of support and information from a bunch of very informed members. Regarding sleep - anxiety is also probably robbing you of at least some of it - and possibly the impact of Pred if you aren't used to it. To help that I initially took a small dose (half or quarter of a 25mg tab) of doxylamine succinate - a sedative which has various brand names - but available over the counter here in OZ and just enough to assist sleep - worked for me well anyway - but check with your chemist or doctor as not recommended for long term. Also if the pain doesn't subside sufficiently as others have said you may need a higher dose of Pred- we have a variable individual uptake. I am also a Kiwi - but now a long time in OZ and I had also not heard of PMR or its relation GCA which I also have, But lots of us from Aotearoa originally descended from that Northern European gene pool which has been associated with this AI disease. 'Good' thing is most of us will recover in the end which is a better 'option' than many other illnesses !
All good wishes