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I am the mother of a newly diagnosed ME sufferer. My son has had ongoing health issues dating back over 10 years, and yesterday we finally got a diagnosis. Not only does he have ME he also has Gilberts Syndrome. It has shocked me that the signs were there, the tests were ongoing but it was failed to be picked up. I feel like I have failed him as a mother. In 2014 unbeknown to me he contracted Glandular Fever, which again went undetected but, it was appear that this was the trigger for the ME to surface. The last 4 years have been the most important for him, with GCSE's that were subsequently failed despite being predicted A's & A*, I now think had I of known about the illness it could have been managed but, feel it's now too late. Moving forward we have been referred to a Psychologist in the hope that they can help him deal with it. I feel lost, I feel like I failed him as a parent. Does anyone else have any experience of this and how have you coped. Every day is an effort for him, he's constantly tired and concentration is poor!
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