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New Diagnosis of FMS

Posted , 4 users are following.

angelcake61
angelcake61

HI

For just over 3years I have had polimyalgia rheumatica for which I took prednisolone , as I came down to the low dosage pains and aches came back and eventually I stopped taking the steroids altogether.   My aches and pains were different and I didn't have a massive flare of PMR, I started to think maybe I have fibromyalgia.

I experience flu like symptoms and just want to wrap myself in cotton wool, if I get slightly knocked or move the wrong way i just feel like crying. My feet are are sore and ache, sometimes my neck and shoulders,hands, forearms, headaches, migraines, restless legs, diverticulitis, carpal tunnel,  difficulty sleeping as lying in one position causes my arms to ache and pins and needles in my fingers.  Doctor checked my esr levels and said they are not consistent with the polymyalgia and I don't think the pain is the same. From that and my symptoms she says I have FMS, and prescribed naproxen and night time amitriptilyne 10 or 20 mg, 10 didn't do anything, 20 mg did,I slept a little to well and felt that because of possible carer responsibilities through the night it's wise not to take the 20mg.  Naproxen doesn't really get rid of all the symptoms, if I take them religiously 500mg twice a day, they work better but I am worried about taking them forever.

Do you have any advice or thoughts to share with me please ? 

0 likes, 3 replies

3 Replies

  • jcirillo
    jcirillo angelcake61

    Posted

    Your symptoms do sound like fibromyalgia.  I experienced almost all of those symptoms myself.  I was diagnosed about 11 years ago.  I tried most prescription meds, but had no luck with them.  I was still in constant pain and had extreme fatigue.  I now control my symptoms with a variety of natural supplements that have worked very well for me.
    • angelcake61
      angelcake61 jcirillo

      Posted

      Thank you for your reply, I'm never sure what is down to the fibro or something that I should be seein my doctor about.    Do the hot sweats go with fibro ?I've already gone through the menopause and these are not the same.   Naproxen doesn't seem to take away the back of the neck pain which radiates across and stops short of my shoulders, it makes lying down very uncomfortable, and just lately the constant thick head, not dizzy or anything just a dull feeling that stops me from being alert, is this fibromyalgia?

      I would really appreciate some answers, I feel I'm like a sinking ship, I keep bright and bubbly on the outside, but I do constantly moan that I ache.   To see the doctor that is the 'good' doctor is a six weeks wait.    She hasn't referred me to a rheumatologist, but the she never did with the polymyalgia either.   Where do I go from here ?

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