New diagnosis of osteopenia

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Hi, I’m 43 and yesterday was informed my bone density test was -2.3 and -2.2. My ortho wants me to take forteo. We agreed to maintain for the time being (until I can look more into medication) and I started taking fosamax this morning. After some research into forteo my husband and I have agreed I’m not going to take it, Atleast not until I know more about it, as the risks that I have found so far are too great. I have also looked into the physicians and am wondering if I should see an endocrinologist for this issue. Is anyone currently on forteo and what do you think about it. Also what’s the best type of doctor to deal with this? I have always trusted my ortho but he is really pushing for this medication. I think his reasoning is probably due to my age. To be honest, I’m trying to stay positive about this and could really use some help. Thank you.

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  • Posted

    Have you tried going the natural route in view of the fact that your tscores are not osteoporosis.

    Vitamin K2 aims the calcium onto the bones for a start. If you lack vitamin D3 it affects your bone density. I was a long time in that situation without realising it.

    People who have been diagnosed have sometimes been found to be deficient in magnesium. Blood tests will check your levels in calcium, vitamin d and magnesium.

    A healthy diet that focuses on bone building as well as weight bearing exercise is also advised.

    There is quite a lot of research that you can access online.

    All the best.

    • Posted

      I was reading several of the posts and found out about k2 thru them. I will add that and magnesium to my supplements. I just need to figure out how much to take. I am also going to find an endocrinologist and get all my labs completed to see what else I might need to add.  

      I’m very new to this diagnosis and feel like I’m cramming last minute for a test. I’m trying to get as much information as possible to make informed decisions. 

      Thank you.

  • Posted

    That is very wise. Read and listen then make the best decision for you.

    I resisted taking the drugs and at the moment I am happy with that decision.

    My sister tried fosamax and prolia and she was not well. I am similar to her except she has lost a massive amount of weight without dieting which is worrying. I am not pro the drugs and believe insufficient studies have been done. Why a person has osteoporosis or osteopenia needs to answered. Each person needs to be assessed individually.

    There are some good people on here and although we do not always agree we respect each other and never denigrate. You can feel strongly without putting anyone else down.

    It is good to argue your point of view and know that someone will be a bit wiser because of it. 

    So long as no one forces you to make a decision before you are ready the final conclusion you come to is right for you at that time.

    I have not broken bones and that is also a factor in one’s decision. 

    Many people have osteoporosis and do not know it. I often envy them.

    We are all different.

    All the best,

    Kathleen.

  • Posted

    I agree with all that Kathleen has said, try to get blood tests done to find out why you have osteopenia.  Just to add a couple of other points.

    Look at your diet, are you eating sufficient protein and Ca containing foods?

    Protein is essential for the maintenance of the bone matrix, which gives it strength and flexibility.

    Its been shown that Ca is better obtained from diet if possible and Ca supplements should only be taken to make up a short fall.  Too much Ca can lead to kidney stones and calcified arterial plaque.The RDA seems to vary between 1000 and 1200mg of Ca per day.  Some time ago the NOS did say that 700mg of Ca is actually sufficient for most people. I personally aim for the RDA.

    Kathleen mentioned Magnesium, Vit D3 and vit K2. I started taking these along with vit A retinol, after reading the book: ‘Vitamin K2 and the Ca Paradox’ by Kate Rheaume Bleue. She explains how they work together to aid the absorption and utilisation of Ca. 

    Good luck

    • Posted

      There is so much different advice online. One sight said to have low protein diet. Which threw me for a loop as Lean protein is good for you. I eat pretty healthy, salads and fresh veggies, lean proteins (my downside is bacon and no I’m not eating turkey bacon tried and let’s just say “nevermore, nevermore”). I have always preferred veggies to meat but always made myself eat some meat. I’m aweful about taking vitamins until recently. I have the small bone frame,  my one downfall is smoking (which I’m working on). 

      I did the scan as a screening after talking to my ortho for months (no broken bones but other issues). I’m post menopausal 20+ years without hormones due to family history of cancer. I have a great support system in my family. My fear about the osteopenia was my doctor told me had I done the test in a year, instead of now, I would have osteoporosis. 

      I will look for this book you were telling me about. Any other information would be greatly appreciated, thank you. 

    • Posted

      It is no longer considered best practice to prescribe osteoporosis meds to someone who is only osteopenic, although there may be some other risk factors (previous fracture, certain medications (like steroids) which increase the likelihood that a doctor will do so.  I had some of those other risk factors, and started out with a bone density reading not much better than yours, was prescribed AA but turned it down and went the natural route.  In one year I improved my t-score form -2 to -1.6 and they are no longer recommending the meds, despite the other risk factors still being in place!

      The protein advice is a bit askew.  The issue is, I believe, that meat (and some dairy like liquid milk) give you too much phosphorus which is unhelpful to the bones.  Protein is good, especially if you reduce animal sources, and with dairy concentrate more on fermented forms like yoghurt (shown to improve calcium absorption) kefir and some cheeses.  In fact all fermented foods are good, but you should introduce them in small quantities if you aren't used to them to allow your gut time to adapt.  Yes, supplements like D3 and K2 are very important, and you want to make sure you are getting enough magnesium either through diet or occasional supplements, to balance your calcium intake.  Magnesium also helps with bones and is readily available in leafy greens and other foods but you might need a bit more when taking extra calcium.  If you take extra calcium a couple of smaller doses at different times of day are better than one large dose as the body can only absorb just so much at one time.

      Also appropriate weight bearing exercise is very important as this is what encourages the body to build more bone.

    • Posted

      I should add that my doctor was very keen for me to be on AA, especially, I should note, after she'd attended a professional workshop about osteoporosis. I refused, and when I got those improved results after one year she asked me how I did it! 

    • Posted

      Hi Sharesa   I sent you another reply, mainly about diet, about 10 minutes ago and again it hasn’t been shown, but waiting for the moderator,  

      It was basically about altering my 40+ yrs vegetarian diet when I started breaking bones,

       

      I now include organically raised dairy, especially goat yogurt, organically raised chicken, eggs, butter, out door raised lamb and tinned Alaskan Wild Red Salmon.  Provided you include the bones and liquid, from the salmon, It’s a very good good source of protein, Ca, D3 and omega 3.

      Whether my other 2 replies will ever appear, goodness knows. As for why they have been held up, I’ve no idea!   Hopefully the moderator will explain to me what they dislike about them.

      Best wishes

    • Posted

      Things are automatically sent to moderation.  This is done by a machine.  You have to wait for the human moderator to view the post.  As I think I posted elsewhere the human moderator does take the occasional few hours or even a weekend off!
    • Posted

      Now that your post has appeared I'm thrilled that the book you named (the reason for moderation, the robot knows nothing) has been approved.  I love this book, have a copy on my e-reader.  

    • Posted

      Hi Anhaga can you tell me the name of this book. I cannot see the post

    • Posted

      Scroll up quite far to a longish post by Lynne.,  I don't want to write out the name of the book again in case this reply gets sent to moderation.  But you could do a find search on the page for the word bleue which is part of the author's name. 

    • Posted

      I am also trying to go the natural route. I am 63 , no fractures yet.

      My spine t-score is-3.4 and hips -1.8.

      I wondered if you would mind giving your age as you are very inspiring. Do you know where I can find information about K2 doses?

      Thanks

    • Posted

      I am not 70, but I got my diagnosis about two and a half years ago after I starrted taking prednisone for polymyalgia.   If you google health authority Vitamin K2 you should find a really good article about this vitamin.  As for doses I just go with the recommendation on my supplement bottle.  I think it's unlikely we will overdose on K2 as the supplement doses are very small, measured in mcg not mg.  People who eat natto, the Japanese fermented soy which is the source of our supplements, get far more than that in a helping, and doesn't do them any harm.  Although of course getting a vitamin from a food is always better than from a supplement, if we can.  I haven't tried natto myself.  Not sure where I could find it.  And I understand it's an acquired taste!

    • Posted

      NOW 70 - need an edit button rolleyes
    • Posted

      Thanks that’s really helpful, I will check it out.

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