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Ive had migraines since I was 18. They followed the same pattern - visual disturbances, feeling like my arms weren't my own, numbness, severe headache. 48 hours later would feel better than ever. Almost as if I needed the migraine to clear something inside me.
Since Ive got older they are changing. And apparently it's because they are vestibular migraine which change as I get older and hormones change. So now I'm not sure....I am dizzy a lot. When I move my eyes. Like vertigo but instead of the world feeling like its moving the world is still and I am sinking. The world is stable but I am not. I don't get as bad headaches (which I am so thankful for) but have a dull ache in my head all of the time. Sometimes (about a day a week) it is bad - too bad to function.
I learnt to cope with "my old migraines". I knew when my eyes went I'd know the pattern, I knew I'd be out of action for 48 hours and then fine. Now, I feel not so good all of the time. I have a lot of time of work, but spend a lot of time struggling through feeling not so good but not ill enough to be off work.
I read something last week - I have never faked a headache but I have faked feeling well. Well, at the moment that is my life and its not now I want to live.
So is this dizziness and feeling not quite well these vestibular migraines? Or is it something else? Can anyone who gets them and has learnt to understand them help? What can I do to help myself?
Any experiences of people with this diagnosis would help........
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