New diagnosis with Lichen sclerosus - old diagnosis of genital herpes

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Just wondering if there is anyone out there with my situation,  I have recently been diagnosed with LS. I had a genital herpes diagnosis 36 years ago, GP has given me steroid cream for LS which worked initially but now just stings so much. I tried an alternative solution of bicarbonate of soda and coconut oil and I nearly passed out with the pain. I'm at my wits end as I think I might also have Lichen Planus as the pain is extended to the vaginal area.. With all of these I have now given up ever of having an intimate relationship again,  I beat cancer last year and this now seems so unfair as I think the trauma of having cancer and the subsequent surgery have caused all of these recent problems.  I thought it was difficult with the herpes which I now manage quite well. The unwarranted stigma adds to emotional overload,  Feel very alone with all of this.  My GP who is a very young woman thinks 'ts very unfortunate all of this'.

Anyone out there have any ideas.

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  • Posted

    So sorry to hear how painful and distressed you are feeling. Ls seems to flare up and go for no apparent reason, I got Timotine which was a nappy rash cream, and was able to tollerate it, just. I also had to use a barrier gel at all times. At home wore dressing gown and no underwear. Loose clothing, cotton pants. Keep going back to Dr until you find something that eases / soothes it, and hopefully they will all become aware of LS . Wishing you a speedy recovery


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  • Posted

    The advice you have been given by others on this forum is very good. I understand how you feel. A lot of women seem to be using borax in their bathwater or as a spray but I haven't tried it yet. The reason I haven't tried it is because over a month ago I started to use a mixture of 4 tablespoons of Organic Castor Oil, 1 DROP Lemon Grass Essence Oil and 2 DROPS of Lavender Essence Oil. For the first time in over thirty years the itch has gone and I feel so much better. If you are going to try this then do not exceed the drops stipulated and I suggest you use a small dropper as well. It is like a miracle cure for me. I have also used a baby cream called Desitin (Australia) and there is another one called Fissan Paste (South Africa)

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  • Posted

    Thank you, Cannycow and chicks. My mum has been suffering a great deal with the itching and pain of LS. She's in the midst of a lengthy flare probably caused by stress. I'm going to mix the organic castor oil, lemongrass oil, and lavender oil solution and see if it helps. I appreciate all the info and words of support & kindness info this forum. It's been hard on my mum and the hope you've given her by sharing your insight is invaluable.

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