New Drug being Trialled for Fibro

Erykah; I don't remember saying "it was a cure"....if you read the relevant research, the medication is said "to be of great benefit to Fibro Sufferers"......as with ALL medical conditions, many years of research and trials are needed to be of ANY value...how many years have they been researching Cancer?   How many years have they been researching/treating HIV.....they  have found medications/treatments that "help" these sufferers, but No cure....by Cure, I mean "completely" getting rid of the disease/condition......I feel that if just one drug can alleviate the "pain/suffering" of Fibro, that in itself is a Big step.........and there must be "some" professionals who know/understand Fibro, otherwise there wouldn't be any Research............Bron

Of more interest to me is your comment that there may be a connection to the Herpes virus - if that is ever determined conclusively, it would make a great deal of sense.  I've always always been convinced that this condition is post infection or post viral - it would answer so many questions.  Post viral conditions already 'in existence' and recognised present with so many of the symptoms we suffer - particularly muscle pains and fatigue.  Has anyone ever been offered anti viral treatment of any kind?  There are known and tested drugs which have been around for decades for virus treatment and who knows, they may be very beneficial.  

I'm getting very fed up with either no effective treatment, or the 'lets try this even though I know it doesn't work' attitudes of doctors.  I've just got back from a week's holiday where I only went walking on one single day and then suffered three days of almost unbearable pain and seized up completely, plus a stomach upset and total exhaustion.  This is ridiculous - I'm so not prepared to be so debilitated by something that doesn't seem to have any life threatening effects, cant be diagnosed by 90% of the medical profession and for which nobody can find either a cause or a 'cure'.  I do NOT want yet another pill to knock me out, ease the pain temporarily and get me out of the surgery PDQ - I want some bloody answers.  Investigating a viral cause would be common sense surely?

I hear you erykah!!  and agree

Hi Erykah,

I know exactly what you mean... I explained to my doctor about a study that had been done on Fibro ladies, showing that they had far more nerve fibres (from a biopsy of tissue from hands) than the average person, my doctor looked at me like I was crackers! Another GP at my surgery that I'd seen in an emergency admitted to me that doctors know very little about this condition.

But I am glad that it is being studied. At least the 'ologists studying it know that its real. lol.

Having Fibro can make one very disillusioned and add to that a specialist or drs disbelief can make a bad situation a whole lot worse. Just my opinion.

Wishing you better days ahead

Angie x

Morning Carli;   I believe in both aspects........I, too, have had many exposures to the Herpes virus (which fits in with what the researchers are saying), and my thyroid test came in "as border-line".  I am wondering if this Virus actually, also, attacks our Thyroid, causing it to "underfunction"..........I have started taking Oroxine, and do say, I Don't have the Continual Fatigue/lethargy (but do also still have my 2 hour nap to get through the day).....and am awaiting our Hot weather, to see how my "burning" sensation is this year, which is something that I find very hard to tolerate.........as we all say, it Is a trial and error, so I willl just keep myself occupied by following through on any updates that are forwarded through from the Fibro Researchers/Organizations that send me news updates, and see how they apply to me????.....do you do the same??,  as I really feel that I learn a lot from these, and from what I read on this forum................try and have a nice day..............Bron(love these faces....they help me to express how I am feeling)