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Hello to you all,

I havent posted on here before.

I have Fibromyalgia and also ME. I also have TMJ as well.

For many years i have put my pains in my shoulders, neck face/head and eyes down to my FM pains and maybe some of it is.

However i have had a neck x-ray 3 weeks ago and been diagnosed now with CS as well.

What is worrying me is just recently my whole neck and shoulders and both sides of my face becomes very painful and stiff and i go very dizzy and get a pulsating whooshing sound at the back of my head.

I cannot take any meds at all except paracetamol due to FM as react badly to them all. My Gp tells me to keep moving it which i am and think i have overdone things as this dizzy feeling has come back today.

Any advice most appreciated as i know nothing at all about this condition.

Thanks and nice to meet you all.


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7 Replies

  • Posted

    Greetings Julie,

    Sorry to hear you have all those ailments :shock: but you have come to the right place if you want cheering up (where's Gerry when you need him) :lol: There's lots of advice in other threads to get you up to speed on the condition :ok:



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  • Posted

    Hiya Jules smile sad

    Blimey! Who did you upset to get all that lot thrown at you, I'm so sorry you are suffering all this pain, but lets see if we can help you, we may be able to make you smile a lickle too :wink: , watch for Gerry though :wink:

    OK, first idea, have you got a memory foam mattress topper? An absolute god send. Cost about £40 ish, may help your Fibro too.

    Heat also helps, you can get a heat pad from Bo$ts for £20. or a hot water bottle is good too, however I hve read some literature from a bone fida source that heat should not be used for longer than 20 mins at a time, and maybe 3 times per day.

    Take a look see under home remmedies, some excellent advice to be had there.

    Take Care

    Emxx smile

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  • Posted

    Ok. You asked for it. I'm lowering the bar as I post.

    How many c/s sufferers does it take to change a lightbulb?

    Answer: 10

    One to change the bulb and 9 to post their comments on why you really shouldn't be contemplating changing a lightbulb in the first place!

    Any more? :idea:

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  • Posted

    :lol: Gerry

    How many c/s sufferers does it take to change a lightbulb?

    Answer: 1

    Just as long as it's 'low energy'

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  • Posted

    Hello Jules,

    I'm a newbie too and as you can see from the replies you're getting, there are some lovely helpful people here, and some really useful advice.

    I hope you find some solutions for your pain, and keep talking to everyone here. There always seems to be a smile, a word of advice and support, and not forgetting Gerry's jokes to cheer us up :lol: .

    Take care of yourself, Lou xx

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  • Posted

    Thanks all for the friendly welcome.

    Sorry not got back to you but been very poorly.

    Going to do some research on this condition as don't know anything at all about it.


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  • Posted

    Hiya Jules smile

    Be sure to use the links from this website, there are some rubbishy sites out there'

    The good news about CS is that it is not life threatening, it is progressive all though there are reports that it can go into spontaneous remission. It makes you feel really awful, with lots of pain and stiffness, it can affect your balance, your water works and bowels in extreme cases.

    I had an op 18 months ago, from which I have now made a full recovery,and over the past week or so I have enjoyed a pain free period , the first for 3 years. But I'll never, ever forget what this condition did to me. sad

    Emxx smile

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