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I am 50 female and came down with Shingles for the first time in early 12/2018.
But backing up a year, I started with a toothache, a trigeminal neuralgia and eye pain that no one could sort out. Finally my ENT and Neuro said I probably had shingles without a rash affecting my trigeminal nerve. I do not get electric shocks, but I do get pain and dryness around the outside of my left eye, swelling, baggy eye, maybe a hint of a droop (maybe?) and horrible upper rear tooth pain on left with numbness down my cheek, to my lips and up to my eye. My dentist pulled tooth 15 and it has not helped. They thought it might be the tooth so I endured an extraction (3 roots) and dry sockets. Misery.
Sooooo fast forward 6 months after the tooth pull and a year of testing for naught and I have a full blown shingles breakout on my upper torso. ENT says that the eye thing was probably shingles without the rash and now this is my 2nd bout on a different dermatome. Says wait for a facial droop or another breakout before we consider immunology etc. I am so discouraged that I have to wait to literally have a facial droop or drop dead for more work up.
So back to December with the "real" breakout with the rash. Started Valtrex 2 days after the rash started on my left shoulder blade. It wrapped around under my armpit to the front all the way around with a couple of breaks. It was, as you all know, hell, like a cat scratch on a sunburn 24/7. I am left with PHN in the shoulder blade area, deep pain and tingly bee stingy sensation from where it was in the shoulder blade. The front remnants do not have pain. I used a cream late in the game called Shingles symptoms relief cream by Dermachange from Amazon (has Manuka honey and some CBD and other stuff). It burned the oldest bumps but it made the newer ones just coming reabsorb. They went away never opened up and no PHN. So for what that's worth.
I stayed on Valtrex for 2 weeks at 3 grams a day. Then stopped.
Felt gross again around New Years and took another week of 3 grams a day.
FF to February where I got BOTH A & B influenza. I thought I was going to die, but I fought it off and no shingles during it thank god. Slow recovery from flu week by week. Back to work full time.
I have felt like CRUD for the past month or so, so my doc gave me another round of 3 grams a day then 1 gram a day for suppression. I forgot one DOSE and re introduced some chocolate in my diet and ate a chicken sandwich with walnuts and BAM> I broke out again yesterday with a very small cluster on my shoulder blade. It was so strange because I feel pretty energetic and strong. And there are the damn bumps. I used the Shingles relief cream on the bumps and they are virtually GOME today. No redness not raised, just 2 snakebite pinholes. So I am EXTREMELY anxious I am going to develop a full blown attack wrapping around again. Is there anyone here who has had them recurrent who was able to "stop" them or had a milder case. Or god forbid a worse case? Is chocolate enough to give me a 3 bump breakout? UGGGH.
I am feeling so scared and so anxious that these weird cries for help my body is giving, is because something is really wrong like something difficult to find- ovarian cancer (I have a 4cm ovarian cyst that is being watched), and I also have a Mirena. I would LOVE to get it out I have heard horror stories about Mirena side effects but I am afraid to add another variable of change to this equation.
Right now I seem to have squelched the impending breakout on my shoulder blade, but my face eye, cheek, head is itchy etc and I am TERRIFIED I am going to break out on my face and my back at once. Or in the roof of my mouth and throat which feels irritated today.
I am taking L-Lysine 2000 a day, swishing with colloidal silver, and swallowing a litle bit, and taking Valtrex 3X a day 1 gram. I have other stuff in my arsenal like CBD cream and XCBD oil which came today and I will try tonight although I am a little afraid to, and I also have some black seed oil supplement which is supposed to be wonderful for immune build up. Anyone had any luck with that? Does anyone have any advice for anything I should or shouldn't be doing. I am also taking Airborne gummies and using a Restore nasal spray to keep my nose clear. I do epsom salt baths for the magnesium.
If you got this far congratulations I am sorry to burden you fair readers I am at the end of my rope and feel like I cannot cope with all of this and I will not survive it. I don't have a good PCP that is understanding. I don't drink, smoke, take anything stronger than tylenol and do not live near a good functional doctor.
Right now I feel a sore in my mouth and am anxiety ridden as I sit here that because my face is so painful and numb and tingling again could I break out in 2 derms at once?
Does anyone know if I can get a Shingrix shot in this present condition?
Thanks in advance friends. You have my empathy and support!
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