New here and need some fellow trauma advice
Posted , 8 users are following.
Hello, my name is Melanie. Glad I found this forum. I had a traumatic ankle break over four months ago. I am still unable to walk. My surgeon now thinks I may have RSD. I'm not ready for that diagnosis and think he may have jumped the gun, I just found out I have a blood clot which he never considered. My PCP suggested tassel tunnel. I'm so confused . I can't walk at all except hobble maybe six steps in extreme pain. I get waves of pain across my foot. Anyone else had anything like this. I'm scared I may never walk again. I'm 54 and very active, this has been so hard.
0 likes, 11 replies
leelee1022 MeltheBrit
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jannie26408 MeltheBrit
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lim sorry to hear of your injury. I'm 65 and broke e my ankle with dislocation Nov 25. I'm not walking either and got diagnosed 2 weeks ago with RSD or known as CRPS. Here's what I have
locked up foot
shiny skin, tight as a drum, hot to the touch but feels cold
limited range of motion
pain24/7
dfferent colour from other foot
heres what I started this week from my Dr who is a functional Dr.
Gabbapentin/ ketamine cream on spine three times a day
LDN - low dose netrexone to boost immune system
massage daily on foot and leg from husband
hydrotherapy bath every other day
Physio twice a week
daily exercise routine at home
vitamins including but C, d, b
pain clinic referral
mirror therapy not to mention meditation, great support and low key stress free as possible, stress triggers it more.
what I've learned in two weeks is the earlier treatment the earlier for hope of remission. It has been a hard pill to swallow but it is the central nervous system that is in overdrive. Hang in there but I must tell you aggressive treatment is needed if it is indeed RSD or CRPS.
I hope this helps you Melanie- im here if you have questions even though I'm a newby to this disease.
best of luck
jannie 👣
MeltheBrit jannie26408
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kenneth01219 MeltheBrit
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MsCamboot MeltheBrit
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I'm six months post op. I came out of the cam boot only on 5 months post op. I've had a very hard time, due to a very complicated broken/ dislocated ankle. I am walking/hobbling very slowly with a limp and at times I don't walk in a line. I am restricted on how far I walk and for how long. Not walking at four months doesn't seem abnormal to me. When I get out of bed in the morning I feel crippled and it takes awhile to get the ankle and foot moving. I too have pain in my FOOT and I could swear I'd broken that too. I have physio once a week and the physio says she has seen plenty of ankle breaks but not one like mine. I ended up breaking down. My emotions are up and down and I feel no one understands apart from the other ankle breakers in this group. My life has completely changed but I'm staying positive. I can only go down steps on the bad foot and ankle one step at a time. I have limited movement in both foot and ankle. I've come a long way in the last 6 months and it's been a long, tiring haul. I'm believing to fully recover with time. I hope you recover well too.
MeltheBrit MsCamboot
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Not suffered this pain or emotion just don't understand what we are all going through .
Gill1111 MeltheBrit
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Pone thing I have learnt it a long process and patience needed. There are good days and bad days, but hopefully in time we have more good than bad.
nyahsnanna MeltheBrit
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Even though I've recently become completely-NLP-blind in one eye with compromised vision in the other, until the ankle injury I felt no real grief over the loss of vision. I was enthusiastic over training my new service dog to assist me. Now I 'm fighting the loss of that activity and wondering how I'm going to overcome that loss.
I don't know what RSD is.
I keep reminding myself that this too shall pass, but like you I'm not sure it will. Listening to others on this forum, I'm beginning to know that 14 days is nothing and even 4 months is considered early days so I think there's hope in the long run, but I'm not a very patient person and pain definitely clouds my reason. Not being able to walk IS downright scary !
MsCamboot nyahsnanna
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Everyone is different and heals differently. Don't be discouraged ! You may surprise yourself. You may be up and dancing before any of us. I too feel down at times and that's to be expected. It's a trial we are going through and we will all come through 🙂🙂
MeltheBrit
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beryl49544 MeltheBrit
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