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Hi, yesterday I was told I have celiac disease. I'm not at all 100% that I fully understand what it is exactly yet. I have a dietician referral and was told to join a support forum as well as to get a prescription for staple foods from my GP.
I have multiple health problems. Most are auto-immune and was told if you have an auto-immune disorder the likely hood of getting others is very common.
I was also told that celiac could affect a person in one or both of two ways, the first affecting bowel habits and the second iron levels and liver function. He felt my bowel problems were more likely due to my medication and feels I am far more affected by the iron and liver function levels.
I really am always shattered. So tired I could and have just fallen asleep mid conversation. I just can't keep my eyes open. I've suffered with anaemia for years though. But it has been extreme of late.
I'm not at all sure how the liver function would affect me? There have been times when I've been very ill and needed an NG feeding tube for months but my eating has been fine for a good year. However although eating well I took poorly Xmas eve and after having bloods done was asked if I'd been eating??? It seemed very strange that was asked but nothing more was discussed about it. So when my consultant asked if anyone had mentioned liver problems before that was the only thing I could think of
Other than the health conditions I have, I don't drink or smoke and have always had what I thought to be a good diet also.
My consultant wants to see me back in two months after cutting out the gluten from my diet, getting back on folic acid and hopefully levels will start righting themselves out.
If anyone could help with further information re the celiac that would be a great help.
Also celiac specific support forums in the uk. My consultant recommended I join one but the only one I can find in the uk wants a membership fee which I simply can't afford.
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