New here just been diagnosed.

Justin. I feel for what you are going through. On top of the inner ear issues having PTSD sure doesent help. I was seen by a specialist here in Phoenix that only dealt with inner ear issues. One thing he was SPECIFIC ABOUT, is that virtually any medication, including the ones you are on, will have a negative affect on the tinnitus. I found this to be true. My issue was also the right ear. While no one can address tinnitus substantially other than watching your salt intake, the vestibular sectioning of the balance nerve did address the balance, drop attacks and nausea. I would make sure you have a good doc that specializes in this issue. Other than that do what you can to overcome any depression resulting from this issue. Just a post script. I also had the sweats, cold and other issues like you. I was actually carried out of my office soaking wet one day until my wife could get their and take me home. I would hate to see your condition worsen before you get some good advice from a specialist in the field, even if you have to hunt long and hard for one.

Regards

Richard H

Hi Justin:

So sorry to hear your challenges I had many of the same symptoms and after trying many things, I have gotten my menieres and vertigo under control. Let me tell you what I do and perhaps this will help you. While things did not improve until I started taking the betahistine, I do believe the combination of all of these steps helps. I will put them in order as to what I think is most important in helping resolve my episodes, at least for the time being. Fingers crossed it does not come back.

Exercising at least 4-5 days per week for 45 mins do both Cardio and strength training

Eating a healthy and nutritional LOW SALTdiet

Maintaining a healthy weight for your body size

Betahistine (28g - 1 time per day)

Diuretic daily (Triamterene-HCTZ)

Eliminated caffeine

limited alcohol intake. 

Zoloft - this helps with my anxiety that I think was a trigger (150 Mg per day)

Meditating (10 minutes per day or when I begin to get stressed)

I am a 59-year-old male, 6 ft tall and 200lbs, I work in a high stress senior executive role. I know different things work for different people, but this combination seems to be working for me. Good luck. 

 

Hi Justin,  I am sorry you are suffering so much.   I was diagnosed with Menieres in late 2016 but likely had it for years the Dr. said.  I was on 24 mg Betahistine twice a day for a few years but was still having vertigo attacks.  I am currently taking 48 mg twice a day, so double the previous dose.  Since the new dosage, I have not had an attack.  Betahistine is safe in high dosages.  It took almost a month to get used to the higher dose but I feel much better.  I still have to deal with the tinnitus, ear pain and pressure at times.  Betahistine does not eliminate all symptoms but it improved quality of life for me by controlling the dreaded vertigo.  Diet and exercise help a lot too.  I love red wine but have to really watch it with that!  In extreme moderation!  I am under the care of a top ENT (Neurotologist) who specializes in Menieres.  Speak to your ENT about everything that you are experiencing and keep a diary of your symptoms.  Wishing you much relief soon!  Stay hopeful!  

 

Dear Justin

I am new to this forum & disease. Constant pain in my right ear with the statutory tinnitus. I long to shove a knitting needle in my ear to pop the blockage. Of course I wont .

In September last year I got flu virus & this came along as a result.

Having read your experience it made me cry. You have been though so much.

Isnt it incredible how I have taken my health for granted up until now. Some one some where please find a cure for us all.

Betahistine didn't work for me. But a physiotherapist helped my vertigo. Might be worth a try. No more vertigo since first visit in 2016.

High Justin,

i have a few tips that might help,

Ive sufferd md for 17yrs and have had endless attacks

and mild vertigo just walking about can be strange so i do

empervise with you..if i have an attack as you do in the early hours

it is incredibly frightning when every little move you make brings on the urge 

to throw up i have found that if i adress the fear straight away i can control

the urges to throw up..i slowly get my body level so im centred i.e not angled across

the bed..i reache for my buccal tablets which help to reduce the sickness and then

adress my breathing..breath slowly in the nose and out through the mouth this

helps with the anxiety symtoms i.e highper ventilating tight chest and cold sweats

that come from fear...remember to breath corectly i.e. your stomach should move 

up to the cielling and back done again and never into the chest just like a baby breathes

this may feel hard at first because the nose seems blocked but it is mearly your body

cutting down soes not to hyperventilate..then you need to calmly talk youself through the vetigo

by telling yourself (o.k. it is a menieres attack and it will pass as it always does.try to keep

your body dead still and as relacked as you can..im guessing that you already have an anxiety

disorder as i do from p.t.s.d...i have found stress is a big facter to M.D. it increases the tinnitus

and brings on the small attacks throughout the day so that to needs adressing so hears how i cope

with stress..again you will need to get yourself centred in your bed and adjust your breathing as i

said ..theni do some light exercises to release the pent up adrenaline caused by anxiety..

rember your not exercising but remembering how your bodyfeels relaxed..so i get centred in bed

then readjust my breathing then lift my right leg just enough to feel the wieght of it then let it drop and go

flabby then im concentrating on the feeling of when its relaxed..you move to the next leg do the same

also the left and right leg never really lifting them off the bed and rembering my breathing..you can

spend so much time feeling anxiety that the body forgets how to relaxed and that what we are trying

achieve..you may find youself wanting to cry also twiches or muscle spazems or even being frightend

because the feelings feels new to you this is simply the body going into standby..the body never really

shuts down completly thats how we fall asleep..also i tend to get intrucive thought they might be worries

of the day ..so i carry around an imagenry dumster when i close my eyes and put them all in it telling

myself to deal with them in the morning..this is like a light meditation technic and seems to calm my mind.

I hope all this info help and again breathing the right way is the best way to deal with fear by relaxing the

body fools the head in the flight or fight analogie and it calms the mind..i hope this helps it will take practice

so good luck and i wish you well....stev..