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Help!! Please! I'm seriously suffering!
This all started April 6th when I was eating something and noticed my throats felt constricted, I thought I was having a food allergy. I had my epi pen handy but didn't have to use it. I gave it some time but it never really went away. Three days later I went to the ER, I was told I had pharyngitis received steroid shot and tordal. Started feeling better instantly. Three days later I got the stomach flu and vomited very violently for 6-8 hours. Couldn't start taking the steroids again for two days. Sore throat started coming back. I went back to the ER (I had to go to ER bc we had just moved and didn't have a PCP) told DR sore throat would not go away and what had happened with the flu and steroids. She just prescribed some pain meds to help get me through which I never took and she told me I'd have to wait it out. So it did seem to get better but then occasionally I'd get this pain in my throat. And also I noticed I'd get really out of breath just reading a book to my son or walking from one end of our big back yard to the other end. I have constant heart palpitations which I've had checked twice now and dr says I'm fine. I have been having horrible chest pain this last week or so. Maybe just anxiety. Anyway, here is where things get worse. So last Friday throats hurting pretty bad I go see a NP at the little clinic in Kroger. She prescribes an antibiotic since nothing else has worked yet (forgot to mention I've been tested for mono and strep both negative) take it Friday and I'm fine. Take it Saturday morning without even thinking and all I had eaten was some cantaloupe and drank some coffee. I got extreme diarrhea and almost passed out. Went back to ER they never even gave me fluids.. I told them about throat and all the issues I had been having. Dr laughed at me and said he would do a CT of throat just to make sure I was ok. CT came back clear. He never even came back in the room. He had nurse give me a script for a 12 day taper of steroids. I started them last saturday. That day I felt ok and slept fine. The following day (Sunday) is when i started feeling a little weird and off. Throat never Really for better. Sunday night I couldn't sleep at all. Monday I could barely get off couch.. just staring at wall, can barely move, or eat, called and made appt with ENT for Wednesday (surprisingly). Tuesday I felt just as bad, can't eat, can't sleep, can't move. Go for appt Wednesday morning.. blood pressure through the roof. Tell them all that's been going on they look in my throat and nose and order a thyroid ultrasound and swallow study. By Wednesday evening throat hurts so bad I can hardly move I demand my husband take me to ER once again. They check my blood levels and do ekg. Everything looks fine even though heart rate elevated. Thyroid hormone looks fine. Dr does tell me to stop taking steroid that he never would've prescribed me that.
It's not helping so stop taking it. So I was happy about that. Gives me meds to help me sleep. I slept pretty well and thought Thursday would be better but I'm still feeling so sluggish and tired and theist huets. Stay in bed all day.
I know I'm rambling on and on but there is so much to story!
I forgot to mention at this point the throat pain has moved down to where it feels like my thyroid is located. It was up higher in neck. And now I'm noticing I'm kind of choking on food a little when I eat. And I can feel something back there that seems to get stuck.
So now it's Friday.. I didn't sleep terrible but not great either. Throat pain is awful. It's like a constricting feeling around my neck. And I'll get random shooting pains in my neck. Still having chest pain too. I have thyroid ultrasound they say that looks fine. I have swallow study therapist tells me he can see where food is catching in my esophagus and flap is not closing. Then he can see as good goes further down it gets stuck too. Then when I take a drink of soda water I can get food down.
Friday night, I can't sleep, I can't get out of bed, I'm having horrible anxiety. I get up at 2am and take a shower. By 330 I'm at the ER AGAIN!! Bc I can't take this anymore!! Dr on duty last night says he thinks I have something called achalasia. I have never heard of it! He fills me in. Sounds exactly like the issues I'm having. He has me drink something that numbs my mouth to help with pain and gives me a muscle relaxer. I still don't sleep great bc I have a three year old that gets up at 730am.
So here I am now. Throat still hurts, I still can't eat much, I am feeling better since coming off steroids though, but lacking energy from no sleep and not eating. I am praying to be able to sleep tonight!! I am scared my throat is going to close up! So I have anxiety and can't go to bed!! Please someone help! Tell me your thoughts.. didntsking that 12 day taper of steroids do this to my esophagus? Bc that's what I'i e read somewhere.
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