New here, so anxious

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Recently diagnosed with BPH. Things were so bad I had a foley cath for three weeks. cath came out. Im able to urinate some, but noticing my bladder never feels full.

uro did a scope yesterday and said i had a medial lobe of prostate obstructing. Said the obstruction works like a ball valve of sorts and never allows me to empty more. so my options are a TURP or self cath. I have seen a ton of posts on here from guys that get used to it and treat it like a normal thing, not unlike brushing teeth. To be honest, i am scared to do this and i am so uncertain why my bladder doesnt feel full. any help would be needed.

is a turp at 51 a reasonable option?

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  • Posted

    I'm 52 and have a ball valve presentation too. deemed a bladder obstruction but i seem to be voiding some and never feel close to retaining fluid.

    my bladder also never feels full because I have to go urinate every 40 min to hour. Is that why your bladder never feels full to you --because of the frequency? Have you tried drinking alot of water quickly (say 20 to 25oz) to stimulate your bladder to create a greater urge. this is what they do when they measure your post void residual. It may not be a good thing for you to do if you have been on a foley cath and can't urinate much.

    earlier this year I would feel retained when I was voiding less. It felt like my bladder wasn't emptying and that is more typical of BPH I think.

    at 51, I wouldn't assume TURP is your best option. I have been told Aquablation is better because of the lower risk of retrograde ejaculation. You should see if someone does that in your area. Alot depends on how large your prostate is too for a TURP. At around 80cc/grams, the uro can still do the TURP but they might start pushing you to something like an Aquablation since the resection time is faster (although with set up it time of the computer it may be about the same). You can also look into epTURP which some urologists try to do (ejaculation sparing). Look up Dr. Pohlman and Prostate Health Academy online. If you're in the Mid-West, it may be worth a visit to him since he does both aquablation and epTURP.

    I could not get the intermittent cathetherization done so I understand your fear. All of it is fear inducing but once you get over the shock that this is really happening to you at this age, you should just focus and visualize on being able to urinate well again and preserving a healthy bladder for the future.

  • Posted

    by the way, we are clearly in the minority in our 50's having to have a resecting procedure since the average age is low to mid 60's, but a fair number of people get TURPs and similar in the early to late 50's. Some even in their late 40's on this board. The one thing I'm trying to figure out is what such a procedure, which generally cuts into the urinary bladder neck and renders that internal spinchter incompetent, will mean if I live 25 or 30 years into the future. after this type of procedure only one spincther (the external one) is working. As you age that muscle will weaken. So does that necessarily mean incontinence in the future or leakage? most people don't think about the future with something like this but take it day by day and hope for 10 years before having to do something again, but i'm just wondering what the long term impact of starting so young is. If i ever need another procedure, i won't care about preserving my ejaculate so much and will go with a HOLEP type procedure since I believe the odds of needing another repeat are lower with that. with aquablation, the long term permanence are not known yet.

  • Posted

    51 is young to have a Turp, but some people do it. You will most likely end up with Retrograde Ejaculation (RE). The Urologists will tell you that the Retrograde Ejaculation is no big deal, but I don't believe that, I would not want it myself. I have experienced it due to Flomax (Tamsulosin), but it is temporary then. When I took Flomax I would only have RE for about 12 hours. So if you time it right you still have ejaculation when you need it. Plus when you stop taking Flomax the ejaculation comes back within a day or so. I would avoid drugs like Avodart that shrink the prostate, because they cause Erectile Dysfunction (ED) which can be more permanent than the urologists might lead you to believe.

    Before you have a Turp you should try some of the drugs like Flomax . It relaxes the prostate and bladder neck making it easier to urinate. Before you try Turp or other surgeries you should have a lot more testing done, like: Flow rate test, Post void residual test, Digital Rectal Exam (DRE) to estimate size, Trans Rectal Ultra Sound (TRUS) to accurately measure the size. The Urologist will probably also want to do Cystoscopy to measure size of the prostate, look for urethral strictures, and look for a protruding median lobe.

    You can also ask a Urologist's office to show you how to self catheterize. I have been doing it for 4.5 years now, and it is not bad. You can avoid the drugs and surgeries and keep all you sex functions. There are some excellent discussions about it on this web site started by Jim James.

    • Posted

      in europe they are much better about trying to preserve wet ejaculation. there is epTURP (ejaculation preserving TURP) and even ejaculation preserving green light PVP groups. here in the US, the only person advertising that is Dr Pohlman who runs prostate health academy.

      I agree taking flomax every other day helps you have normal ejaculation on the 2nd day. research shows every other day is the same as every day.

  • Edited

    I'm in the same boat, at 48. I ended up in the ER because I couldn't void at all about 6 months ago. I'm on flomax, so now I have retro and I still have issues peeing some times. I also never feel like I fully empty my bladder and sometimes feel an ache in my lower abdomen, probaby due to urine retention.. I travel with catheters now, but haven't needed to use them. I'm going to have aquablation done next year when my new insurance kicks in. I also have my prostate pushing into my bladder. In my case it is my anterior lobe. The ultrasound measusured my prostate size in the 90cc range. It sucks to have this issue so young. I would like to know what causes this issue in some people.

    • Edited

      so does anterior lobe mean a lateral lobe or something diff? i understand it's not the median lobe. how did they identify that? i've had a hell of a time getting a 100% answer from IR and uros on whether I have a median lobe or a lateral lobe protruding into the bladder.

    • Posted

      From what I understand, it would be the part of your prostate that is the farthest from your rectum, or the part closest to your front side. He showed it to me in the video of my cystoscopy and also the ultrasound.

    • Posted

      The median lobe and protrusion into the bladder can be seen with a cystoscope or on MRI. It is most likely a Urologist who would identify it. An Interventional Radiologist (IR) would have to use MRI to see it.

    • Posted

      FYI, Dr. Pohlman in the Prostate health Academy was asked if aquablation could do an anterior lobe. He said it doesn't but i think the urologist goes in after and works on it when they cauterize the bleeders. He has done over 60 aquablations so you may want to ask your doctor on that one.

    • Posted

      Yes, I am on that forum too. I was the one who posted. It seems I am in the minority to have such a large anterior lobe. Hopefully I can get this resolved one way or another.

  • Edited

    Well i guess the time has to come for CiC.

    sink or swim i guess. I'm voiding some but my stream is weak. The odd thing is i hardly feel the need to urinate. so i i have gone from "gotta go now" to very little urge. interestingly coffee and alcohol create a strong urge to urinate. neither is ideal.

    I don't want the Foley and i know that CIC 4-5 times a day will give me my life back. I just cant shake the fear of pain.

    as a reminder, uro did a scope and said median lobe is creating a ball valve effect. TURP mentioned, but id prefer to CIC for 10-20 years if i could.

    thanks for the help. JimJames posts have been great but i am unclear which direction to pull the urethra

    • Edited

      Keep us posted on how cic goes. I did it once myself in the doctor's office, but haven't done it since. I did watch a video on youtube about it, and the tip they gave is to wiggle your toes while you are inserting the catheter. It keeps you from clinching down on it and should make it pass through the prostate easier. I'm tempted to start doing that until I have a surgical procedure. I also feel like my bladder doesn't give me the same signal that my bladder is full like it used to. I generally just go now because it has been a while as opposed to having that feeling I need to urinate. Coffee does create that urgency, but nothing like before.

    • Posted

      Hi Russ, what about aquablation? The cathether recovery seems better for many than a TURP. curious on your aversion to that procedure. Worried about bladder neck scarring or something else? do you have a median lobe?

    • Posted

      For CIC start with a very soft flexable catheter like Bard Red Rubber. You have to use external lube with it and insert the catheter with your fingers, so your hands must be very clean. I also clean the urethra opening with providone iodine on a 2"x2" gauze pad. When out from home I use anti bacterial wipes. The iodine can be cleaned up easily with water because it is very water soluble. After you do it the first few times you will not feel anything when inserting. After a week or more you can change catheters to a stiffer type like the pre-lubed Coloplast Speedicath.

    • Posted

      Pre-lubed caths such as Speedicath were my favorite! I couldn't get the soft flexible ones to work properly and I didn't like to touch any surface going into my body. Luckily, the medical supplies salesperson gave me a bunch of samples that I could try before making a large order.

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