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Hi everyone, I have recently been diagnosed with LS and am wondering, do others experience this in phases? I seem to itch at first, then I notice one single open patch of skin that is sore to the touch. I am currently on clobetasol which seems to help
But what I'm wondering is do others experience open ulcers like this?
For general info I am 24yo and diagnosed about 2 months ago. !
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it's good you've come to here as you will feel less alone knowing that others have it and can discuss things openly with people, one thing that's hard to do with this disease. I didn't know I had L S and had never heard of it before. I had a sore type ulcer thing that the clob did get rid of after a few weeks. My skin was very sore and is still as well. How long are you to use your ointment for? I felt better using coconut oil as well to keep things moisturisered. Do you go for follow up soon?
Thank you for your response sue! Reading these posts have helped me a great deal as far as coping! Well, I went to the student health center and they recommended using it twice daily for a couple months until controlled and then backing off to using it more sparingly. It's not necessarily an ulcer, just looks almost like a raw open piece of skin which I think could be how I recognize my flare ups. I start itching for a few days and then this happens. I don't necessarily have itchy white patches but it does itch for a couple of days followed by a small piece of open skin (so small I need to use a mirror or take a picture but it feels like a paper cut almost)! I bought some coconut oil and will have to try that!
Keep reading posts on this site for other ideas and talk to your doctor.
Take care and good luck.
Hi I'm 21 and was diagnosed with LS when I was 19, I had to stop wearing tight jeans and knickers as i found that it would rub and I would get red sore patches in the areas it rubbed. I found when I started to wear dresses and skirts my symptoms improved a lot. I don't experience any ulcers or blisters, and a I don't have any white patches either. I just get itching and soreness and the skin feels dry and kind of sticky? So I use coconut oil to keep moisturised, I use clob about once every 2 weeks now
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