New man on the forum
Posted , 6 users are following.
Hello all
Just thought I would introduce myself, I’m Richard aged 38 married with 3 kids and seem to be one of the few men on this forum, but I have yet to be diagnosed with Fibro or M.E.
It started in June this year after a RTA, I went to the docs after the terrible pains in my limbs wouldn’t go, feeling tired and achy, depressed. The doc ran loads of blood tests and I was diagnosed with Underactive thyroid and high cholesterol.
I was a bit shocked at this because I’d never had anything wrong with me before, but I looked it up and thought, oh well sounds like the pills will sort me out and I’ll go back to living a normal life. But I don’t seem to be getting any better, in fact I would say I’m now worse.
I’m currently on all sorts of meds which include the usual, Levothyroxine, Tramadol, Amitriptyline and Simvastatin for my cholesterol. It’s a wonder I don’t rattle when I walk! (That’s when I can walk).
My doctor now seems to think I have Fibromyalgia or M.E, but like many on this site I’m having to go through all the tests, which seems to take time. The docs been really good and does seem to have some knowledge and understanding of this condition, after all I’d never even heard of it until he said that he suspected that’s what was wrong with me.
Looking back before the RTA, I had been under a great deal of stress with work and personal life but being wrapped up in it all, I think the adrenalin must have kept me going. I can now see that I already had some of the symptoms, feeling low, tiredness all the time, lethargic, loss of memory, emotional (I hate to admit this but I could cry at the most stupid things)
I just feel rubbish all the time, my legs and arms are the worse, aching constantly and I’m unable to sleep properly due to the pain being so severe that I can’t get comfortable. I can’t walk for more than 20 metres without having to stop and rest.
To date I am now waiting for an appointment to see a rheumatologist after being discharged from Physiotherapy and seeing at Orthopaedic surgeon who both said that I needed to see a rheumatologist and that they suspect Fybro.
I can’t believe how my life has been turned upside down in such a short period of time, 12 months ago and had lots going for me and was really active with walking my 2 dogs and running a paranormal group had a great job and family life, now all my spare time is sat feeling sorry for myself in pain and tired.
Work has been really good with me and understand that I can’t get up sometimes in the morning so have allowed me to work flexi time to fit in when I feel well and have made loads of adjustments for me so I can carry on working.
My poor wife has been great and understands that I feel rubbish and knows when I’m having a really bad day. However the worse thing is that I feel such a fraud sometimes. I seem to have bad days, then I have what I call wave days, these are days when I’m up and down. One minute I feel fine and think thank god I’m cured, (you know like just after a cold) but then the next minute I’m in great pain again.
I seem to suffer from the pain in my legs constantly which effects my walking, but I feel worse when it’s in my arms too, I can’t even hold the phone to my head on my bad days, all I want to do is just lay down. I then get depressed which seems to make it worse, so I end up going to bed and writing the day off as a bad one.
Anyhow, I’ll sign off for now has I seemed to have gone on a bit, just glad to know that there are people who understand how I feel.
Richard
0 likes, 113 replies
Lizy
Posted
Not feeling too good today think i may have done too much plus the stress of the last few days.
Alan is at work at the moment trying to get hold of all his paperwork to fight his case tomorrow. Hes off to london at 6.30am tomorrow and the meeting is at 11am.
Sjogrens syndrome is where the body attacks the salivary and tear glands. I have dry eyes, he put the blotting paper in my eyes for ages it was still bone dry when he took them out and also my mouth is dry all the time, as i am not making enough saliva so i find it hard to swollow food. Its another autoimune thing. It can also give all the same muscle pains and tiredness as lupus, fibromyalgia and thyroid problems.
Linda I'm pleased your mum is getting more help, hopefully you might also feel a little better now that you don't have to do so much worrying. I hope your alterations go smoothly.
Tess hope you have recovered from your holiday and yes I am going to stick around as you guys have been so supportive and fun over the last few months and anyway It may well turn out i have fibro too. I can't see it being removed from my medical notes can you.
Richard hope everything is going well for you. Hope you have had some good days.
Di hope life is treating you well.
Lindy and Ses hope all is well with you both.
Take care everyone.
Lizzy
richard1971
Posted
I hope you,re all feeling ok?
Lizy I wish your husband the best of luck for tomorrow, I really hope he wins his case. There's nothing that makes me more angry that someone who can do that to another person. They have no regard for there home life or anything and what impact it has on your lives. Just hope that the guys who's doing it has his cumuppance some day... Please let us know how he gets on? I had something similar happen to me late last year amongst other things and I'm sure that's what caused my Fybro...
Linda, I'm glad thngs seems to be taking a turn for the better for you too! We've also had great pressure from my inlaws for the last 12 months, I'll tell you all some time, but it involved hiring a plane and medical crew to get them home from Spain! COST £27,000 but the problems we've had since we got them back have been so stressfull, there never seems to be an end to it all.
I've had a few bad days again this week, never saw Sunday was flat out all day, I was right fed up. Anyhow, just got my MRI appointment through, got it next Wednesday!!! hope that's not a sign of them thinking there's anything seriously wrong! I'm just hoping that I've managed to get a cancellation!!!
Also I went for a dip in the hydro pool last night to try it out before I'm referred, my god I feel like I've been hit by a bus today. God I ache!!! but in a strange way feel better, it was lovely getting in the pool though, I would reconmend it to anyone who's thinking of trying it. Just don't over do it and use it to relax. I only stayed in it for 30 mins and didn't swim after being advised by one of the pool attendants there.
Take care all of you and don't forget to wish your husband the best of luck for tomorrow Lizy, I've got my fingers crossed.
Richard
Squires
Posted
Good you are staying around to talk to us Lizzy. Won't be the same without on the site. :lol: Good you don't have too long to wait for your MRI Scan Richard and hope it goes well for you.
Tess
Squires
Posted
Also meant to wish your husband good luck for tomorrow too! Forget to put that in the last message. You can tell its getting late and I am getting forgetful. :cry:
Tess
Lizy
Posted
Richard glad you managed to get a MRI scan appt quickly. Your lucky if you can just use the hydro pool that option is not available here.
Its my husbands boss making the complaint and its a female!!!!!!!. They have put the disciplin meeting back till tuesday as my hubby brought up so many questions they decided they needed more time. After he found out last Feb that i didn't want to live any more and on top of that stress we had a lot of trouble with one of our kids (who couldn't handle me being ill) and he also had a brain tummor removed in 2000 and has left him with so many small medical problems the last thing on his mind is to harrass his boss. His work wrote to his doctor who replied change his working envoiroment. I think she has gone out of her way to make life difficult for him. If they do sack him we are really going to struggle and that is our biggest worry.
Take care all.
Lizzy
Squires
Posted
I do hope it works out for you and your husband with his job. It must be a real nightmare for you both. :cry: Its not easy when you have four children to bring up as well. I know as we have five and like you have had two go to university and that in itself is expensive as you need to help them out with money etc.
Sometimes life seems so unfair for people like yourselves. I shall be thinking about you. Take care.
Sending you a big hug as I am not there to give you one.#
Tess
paddy
Posted
Richard, my daughter had to have a scan and they booked it through\"Choose and Book\", she could choose out of several hospitals, deciding if she wanted things like the shortest waiting time, a particular consultant, the closest hospital etc. Hope all goes well :!: We don`t have the hydrotherapy option here, not for fibro anyway, its part of the physio dept. of our local hospital.
Lizzy, what a time you`ve been having this year
Just hope everything falls into place for you, you both deserve an easier time of things, not more stress :!: Ray gets up some mornings, when we`ve been having a psrticularly bad time, and he`ll say\" I just wish we could have one day without something going wrong!\" Someone said to me once that God only gives all the problems to the people he knows can cope :!: My reply was that he`d picked the wrong one in me :!:
Well have had a migraine since yesterday afternoon
I`ve always had them but they seem more frequent since the Fibro. I`ve also experienced something today that I haven`t had since before my diagnosis, and I`m now wondering if it`s migraine related rather than the Fibro. My balance goes all funny, if I look up or put my head down, I feel all funny and tend to fall backwards. I actually had several falls about 18months ago.
Well, take care all, need to get organised for the X Factor :!: Sad hey
Linda
Squires
Posted
How are you all today! Went for my flu injection this morning that I have each year and normally ok with. I went with my daughter Claire who also has it. Claire has been hearing things about the swine flu injection from people at work. She has decided not to have that one. They are offering it to the technician and paramedics, also other nhs staff when it is available.
I am not going to have it if I am able to as don't feel there has been enough time to look into the side effects properly. Some people have taken the tamiflu and have had vomiting and other things with that.
Had a busy afternoon! We had a little birthday party for Sophie as she was on on Wednesday. Several children didn't come as they were unwell with sickness bug. Although only a few of us still had a lovely afternoon.
Take care everyone and have good weekend.
Tess