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New Medication is not new.

Posted , 13 users are following.

pat38625
pat38625

Hi Everyone,  I was so tired this moring I was sorely tempted to cancel my drs. appt.  Anyway, it was to see how I was getting on with A Acid, which I haven't taken.  So that was the so called "new medication".  I didn't get off to a good start this morning, I was so tired but I pushed through it and drove to drs.  My appt was 10am but they didn't have me on the system at all for appt.  Then I had to wait ages and ages, then after an hour I was called by the locum dr.  The so called new medication was to see how I getting on with A Acid and then I informed her that I wasn't taking it and the reason why.  She told me the pros and cons and that there were 3 ways to take it.  The weekly one, or a daily one or a yearly one through a drip (that may not be right, as I was too tired to listen)  She was nice enough and told me that the steroids would definitely lead to osteoperosis even if a dexa scan was taken and bone density was normal, because of the long term use as well as the high dose.  I told her I would considerate it sometime when my dental work was finished.

It's either take the AA to prevent loss of bone or don't take it and let PMR damage the muscles (I think) I was just too tired to care about what she was saying.  She gave me two websites to look up - this being one of them and another electronic medicines compendium (PIL) Patient information leaflet.  Just thought I would keep you all in the loop about the new medication which is not new.  Is anyone on this AA?  What is the dosage? Also woke up with a red dot in my left eye.  She said it was subduc (I cannot think straight)  Sorry to disappoint anyone about the not so new AA.  Any comments welcome and thanks in advance.  

1 like, 41 replies

41 Replies

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  • barbara75814
    barbara75814 pat38625

    Posted

    You're certainly right about swimming, Mrs. O. I went to a lovely indoor pool two or three times a week for a few years and loved it. Eventually, I stopped, finding that the dressing, undressing, driving there, etc., were all too much for somebody now in her mid-80's. 

    I am very careful about the calisthenics and find that if I skip two days, my body objects. On his way out the door after my PMR appointment, the rheumatologist told me emphatically, "Whatever you do, you must exercise." And so I do, and so far, knock on wood, my slow reduction in pred causes no pains whatever.

    • MrsO-UK_Surrey
      MrsO-UK_Surrey barbara75814

      Posted

      Barbara, it's wonderful to hear that you are following the recommended slow tapering of Pred and have no pain whasoever.  You are obviously doing something right, so well done, and keep it up!smile
  • Susanne_M_UK
    Susanne_M_UK pat38625

    Posted

    I take AA weekly, no problems so far, but early days.

    Apart from a little gentle walking, I have just bought some dumbbells, 3kg each, which gives me enough resistance without being too heavy to lift. My pharmacist suggested it to me, as normal walking just strengthens your lower limbs. Until I start Nordic walking, of course, which will work on the whole body, but I'm too fatigued at the moment to start.

    • EileenH
      EileenH Susanne_M_UK

      Posted

      Start with very few reps - really, 5 is more than enough at one go! Build up the number slowly!
    • MrsO-UK_Surrey
      MrsO-UK_Surrey Susanne_M_UK

      Posted

      Suzanne, what a great idea with trying the dumbbells until you feel strong enough to tackle the Nordic walking.  Great that you are trying so hard to help yourself - not easy when you feel so poorly.  As Eileen has said, do go easy at first though taking a good few days at each extra lift, to test the waters so to speak.
    • pat38625
      pat38625 Susanne_M_UK

      Posted

      Thanks Susane for your message.  I think it's an individual choice who takes AA and who doesn't.  An informed choice works for me.  Like yourself I am too fatigued to even think about any form of exercise.  I was thinking when I feel better I might try the wii fit.  Until I get my pilates machine up.  Take care.  Pat
    • Susanne_M_UK
      Susanne_M_UK pat38625

      Posted

      Pat, I've got a Wii Fit as well, had almost forgotten about it! Haven't used it for over a year, but may get it out again, - eventually!
    • pat38625
      pat38625 Susanne_M_UK

      Posted

      Yes good idea, when I'm feeling much better I am going to give it a go.  Any exercise is better than none.  But like yourself, too tired.  
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