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crocodile12
crocodile12

Hello to you all, I am a 48yr old male that was diagnosed with Prostate cancer in October. My PSA level was at highest 9.6 and the when down to 7.4. Although my consultant was sure it wasn't cancer.

They found 5 out of 7 samples had cancer on one side and my gleason score was 7 (4+3)

i recently underwent a Open Radical Prostectomy at the priory in Birmingham.

I am now at the stage where pelvic floor exercises are my be all and end all.

Any advice, tips and words of encouragement are welcome.

Thanks in advance.

2 likes, 11 replies

11 Replies

  • miketytus
    miketytus crocodile12

    Posted

    Hi

    had my prostate removed last April by robot. Did not know what to expect like you. How are you feeling?

    Was dry after a couple of months. Erections returned need a little help for sustained sexual activity.

    All this is very individual and depends how good things were be for the op,

    blood tests every 3 months now moved to 6 months . All clear.

    Age. 56

    All the best

    Mike

  • georgeGG
    georgeGG crocodile12

    Posted

    I am very you have been diagnosed with prostate cancer. None the less I extend a very warm welcome to this group. We are a mixture of fellow sufferers and carers.i have found That working through a program of exercises very beneficial aa I can hold my contract with ease. I have found this ability very helpful when dealing with side effects.

    I wish you a very good outcome

    George

  • Kombi_Cruiser
    Kombi_Cruiser crocodile12

    Posted

    G'day Crocodile12... I'm a little ahead of you so I may be able to share some of my experiences that you'll relate to...

    I was 51 when I was diagnosed and operated on...

    You numbers are all much less than mine so from what I understand you have an excellent chance of actually winning your battle...

    Mine has been a pretty lonely journey so hopefully you will have some others close by as I find it helps to keep talking about your journey and your experiences...

    It appears that you are an open minded person which is going to really help - you will understand as time passes...

    Have fun and enjoy every little thing every day as regardless of future outcomes you have been given a ticket to ride so go do what you want with a huge smile on your face...

    • Dudley71081
      Dudley71081 Kombi_Cruiser

      Posted

      Good on you Kombi.   Matey,  mate,  mate ! ...  A lonely journey for you in one way,   but you are most definitely not Alone.  We are all here for you in whatever way we can.   Personally,   I so admire your Spirit.   In the words of a heavy metal song I quite like :  " Never give up.  Don't go under".

      Regards,

      Dudley

    • Kombi_Cruiser
      Kombi_Cruiser Dudley71081

      Posted

      Hey Dudley70181... Many thanks for your comments - appreciated...

      I had an opportunity to have a pretty upfront discussion yesterday with my Oncologist so I'm a bit more settled now... I asked to talk about realistic time frames rather than just the over optomistic viewpoints they all seem to adopt... Very interesting as the 'major' benchmark reference seemed to be in the Gleeson Score and bugger all to do with PSA... Changed my thoughts about not continuing with the Zoladex and had my 3 monthly jab and ventured home for a nice glass of red...

      I had been at a bit of a crossroads until now so if ever you have doubts keep asking and asking (but do understand there's still no certainty) until you get a grasp on your reality...

       

    • georgeGG
      georgeGG Kombi_Cruiser

      Posted

      Hi Dudley and Kombi,

      Well Dudley you may be down under but you are not one for going under. You live by your own advice, so that is quite a recommendation for Kombi just as it is for me. Good on ya mate. (sorry about the Scottish burr. I can't get the accent right, what with my duff hearing and all.)

      Kombi, please say more about what your Oncologist said about PSA and Gleason score (if it is not too shocking for this forum) My Oncologist spouted the Macmillan booklets. I could not fault her. She also recommened the treatment I wanted. She is not the listening type. More challenged in the ears than I am, except when she gets home. She asked my opinion on nothing, not even the weather. Seems your Oncologist was being a little candid. So I would love to know. I like to go to my meetings with doctors with a fair idea of what is coming. So I am always seeing to my education PCa wise.

    • Kombi_Cruiser
      Kombi_Cruiser georgeGG

      Posted

      G'day georgeGG...

      ​The reference was regards the point that I had a Gleeson Score of 5 + 4 = 9... She mentioned that as a result of this that I could expect a start to the end of the effectiveness of the Zoladex in about 9 months... then went on to mentioning additional additions etc. which is about where I switched off... PSA will never go away but simply becomes a more refined time framer as the numbers grow... 

    • georgeGG
      georgeGG Kombi_Cruiser

      Posted

      Thank you Kombi. No surprises other than your Oncologist was open with you. I for one prefer to be told how it is. You do too. I have the impression she wandered off into the usual obfuscating claptrap and that was when you lost interest. 

      So we fight our corner as best we can,

      George

  • ken47739
    ken47739 crocodile12

    Posted

    Hi

    I was 64 when I had my diagnosis my PSA was high 20's my Gleeson was determined as 9 after the operation downgraded to 8.  My cancer was close to the edge of the capsule and after preliminary PSA levels of 0.1 it started to rise so I had radiotherapy and 2. Years of Zoladex.  This all started in 2010.  My surgeon told me that people who kept fit usually had the best outcomes, I started walking after my operation and felt really good walking 4 or 5 miles a day.  Positive attitude helps, I have never questioned why me.

    you are starting this journey as a much younger person.  I was fortunate and was able to retire.  But whatever you do don't give up and try and get a little fitter everyday.

    best wishes and keep the exercises going

    ken

    • Dudley71081
      Dudley71081 ken47739

      Posted

      Very good advice Ken,  about the two most important things we can do for ourselves :  Exrcise and a P.M.A.
  • crocodile12
    crocodile12

    Posted

    Thank you for your replies and advice. I'm not the sort of person who's prepared to sit around feeling sorry for myself.

    I've been doing light walking exercises,but won't stray to far from home in case I feel the need to use a toilet.

    I'd like to have a stroll round town but there are only 2 public toilets and they are at opposite ends of town.

    I was given a card to show in case of emergencies,have any of you had need to use this card and if do have you had any issues.

    Thanks again

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