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New Meniere’s Disease Diagnosis...what next?

Posted , 3 users are following.

emily27825
emily27825

Hi,

I’ve recently been diagnosed with ‘probable meniere’s disease’.

My symptoms started 2 years ago, when I got a bit of a blocked ear and then woke up in the middle of the night with severe vertigo. My symptoms have been on and off since, thankfully I have very few vertigo attacks, I’m just quite wobbly a lot of the time. I’ve lost most of my low frequency hearing and the tinnitus is so loud at times it prevents me from sleeping or thinking. Does anyone have any top tips on how I can improve my symptoms? I’m trying my best to cut down salt (very difficult as a savoury snack lover!), and try to be less stressed which is also difficult. My doctor suggested SERC, does any one have any experience using this? Did it help the tinnitus at all?

Could any one advise any tests I could request that might get me an actual diagnosis? So far I have had;

An MRI, hearing test, and another test that checked the pressure in my ears.

Sorry that this is probably full of questions that have been asked in many other forums!

Any advice is welcome 😃

0 likes, 2 replies

2 Replies

  • arcticblueice
    arcticblueice emily27825

    Edited

    Hey Emily,

    I have bilateral Meniere's Disease and it started with a blocked ear in 2015. Than in 2017 I had my first acute violent rotary vertigo attack that put me down on the bathroom floor at work with vomiting and diarrhea for 3.5 hours. I take 24mg of Betahistine every 8 hours to control the vertigo and hearing aids help some but not all of the tinnitus. An ear, nose and throat specialist should be able to confirm your condition.

    All the best to

  • Bluesmann
    Bluesmann emily27825

    Posted

    SERC Helps with balance but not the tinitus in my case.....get off the salty snacks and drink lots of water..... make sure you have menieres......could be a range of other things....see an ENT. good luck

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