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Hi, I've just joined and hope I'm in the right forum, currently self diagnosing. Please bare with me as might be a bit of waffle.
Last May I came down with a cold that since then I've got better but never shifted it. I constantly get ear ache, sore throats, headaches and lose my voice and such. I also notices I was feeling more tired than usual and never seemed to actually wake up. A short while after my back started playing up again and my alopecia came back. I started struggling to walk to the point where now, going for a shower has to be super quick because I can't stand for long, and cooking dinner is a no go.
I went to my dr who put me for physio and sleep clinic, the latter which I had to cancel as I've 4 children and something always is going on with them. I was re submitted for sleep clinic Which I've still not heard from despite going back.
I've progressively got worse with exhaustion, pain, everything now hurts. My hips to my knees hurt when pressed, my back is never pain free, my outer arms hurt when pressed and my feet hurt as if I've walked miles. I've raynauds in my right foot to my knee, my hips and jaw locks, I wake up stiff and sore and .my quality of life has dramatically changed. I keep going back to the dr who has just upped my pain meds and won't do anything until I've been to the sleep clinic as she's sure it's sleep apnoea. So I went to another dr for a second opinion who gave me more blood tests, this time for rheumatoid arthritis as she thinks it may be connected tissue disorder. My esr came back as 36 which, as I understand it is a little high, yet I've heard nothing from the dr and feel I'm in limbo.
I've no idea what's wrong with me, I've been researching all my symptoms, which I've more than I can remember at times, and the closest I come to is fibro.
Am I way off the mark? Or am I at least in the right direction? What can I do next to get help as I can't keep a going on like this.
Thank you for reading. X
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