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new: PMR -GC 30mg to 40?

Posted , 14 users are following.

dea1313
dea1313

Hi, I was diognosed with PMR and now possible GCA. My Doctor started me on 25mg a day Prednisone. Then after 2weeks to 30, then another 3 weeks to 35mg a day. I was having blood tests every 2 weeks, which were going up, then down etc. She now wants me to go straight onto 40mg a day for 1 month and then take blood. 

I am having some eye problems with headaches and sore scalp.

I know when coming off the Prednisone you have to do it very slow, but has anyone gone up to a higher dose as fast as this?, and if so what advice would you give me.

It's been 2 days now on the 40mg, 1st day was ok, 2nd day within hours my face was so puffed and I had fluid in my feet bad, and the worst pains all over. Felt very unwell. I know this will pass after  a few days, but my worry is am I going up to fast. I also know that if I do have GCA that it has to be controlled fast, eyes etc are more important than pain at this stage.

I really appreciate this forum, I just joined and thank everyone for their own experiences...

Cheers Dea

0 likes, 18 replies

18 Replies

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  • catherine34621
    catherine34621 dea1313

    Posted

    I started Prednisolone in Novvember for TA. I was given 40mgs. per day and the swollen arteries were half the size in no time, I have never been on a higher dose.The lowest I have taken was 15mgs. per day but had to go up after an infection. I am now on 20ms. You have me thinking now!

     

  • alley2
    alley2 dea1313

    Posted

    I have GCA with artery completely blocked left side neck and some blockage affecting my left arm and I was admittted to hospital and for 3 days had 100mg of steroids on the 4th day started trial drug Acema in hospital for a week  which I have had 2 infusions. come home from hospital taking 75mg a day for a month droped 50  2 days nup that caused flair up went back to 75mg. After 2nd trial went down to 60mg well that did not work so I have put myself back to 75mg and going to drop by 5 mg  at a time.  Yep my moon face come on real fast to the pain I get it is unberable but when the steroid kicks in all good I'm guessing it is the disease I am also new to this but learning a lot from others on this site thankyou.  My feet did swell and aches in ligs but that has now settled down.  

    • dea13
      dea13 alley2

      Posted

      Thanks Alley for your reply, sounds ike you have had a hard time on the Pred also....  I know everyone is different, so it's good to hear what others experience .

      Wish you well. Cheers Dea

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