New - preliminary DX and advice needed
Posted , 11 users are following.
Hi all
ive been having ongoing symptoms now for around 10 months (probably longer in reality) - mainly a horrendous itch and whitening that has now covered my entire vulval area with a rougher patch at the perinium thats the worse bit by far!!!! .
initially thought it was thrush so tried otc stuff and went to gp who fobbed me off at firat when i persisted i was finally referred to gynae i had a biopsy a few days ago and hysteroscopy . they also removed a polyp they found. i've been given an appointment to get the results but it isnt for 8 weeks and that feels like a lifetime away ! i'm terrified it may be cancer and not LS , esp given how much there seeme to be ive seen pics on here of people who have shared and it seems to be more in patches but mine is literally the entire vulvar affected which terrifies me. I'm so worried and its not the kinda thing you have loads of people to chat about it to ! no idea how im going to get theough 8 weeks
š¦
0 likes, 25 replies
susan78610 wendy37207
Posted
I also want to mention that I occasionally used this horrible otc spermacide called VCF for a couple years before this all started despite that it was always somewhat irritating. The last time I used it I had burning so bad I cried. I cant prove it but I think it caused a severe ongoing allergy that turned into LS.
Nancy_K_B susan78610
Posted
HI Susan - for me I read every single comment that comes into this forum; it's amazing how much we can learn from each other that I don't think docs even have time to put the 2 and 2 together that we here can do - anecdotal evidence is Still EVIDENCE! smiles.
Anyway, your comment just now made me remember a comment from another forum last year about using vitamin E gel as a suppository at night as we go to bed and our own body heat dissolves the vitamin e as we sleep. here s one article I found just now:
the title of the NCBI . .. NIH study corroborating its effectiveness
A survey of the therapeutic effects of Vitamin E suppositories on vaginal atrophy in postmenopausal women
ahem - you don't have to be menopausal to take advantage of the benefits of vitamin E.
sarb73328 wendy37207
Posted
As I understand it it's lumps and raised red areas that indicate possible cancer. And a dermatologist told me I had as much risk of LS becoming cancer as the whole population has of getting any kind of cancer, namely 5% chance. Do others agree?
Nancy_K_B sarb73328
Posted
SARB! I totally agree with you and your dermatologist. Everything I've run across this last year suggests that - IF one reads the info, instead of getting all worked up about the big C word (I've read about So many natural solutions to cancer, and have friends who have USED them that that worry just melts away)
.
I"m trying to refind an article that noted that fact but not coming across it just yet.
The whole bit about not worrying is based on, for me, doing my due diligence with maxing out my nutritional status. We all know that cancer is an "acidic" state, and we all "know" that our food supply is horribly nutritionally deficient from 50-60 years ago. We can take our cue from those two simple bits of intel and DO something about it.
Thanks for sharing your doctors statement - that just makes me feel even more confident, SARB.
beverly52803 wendy37207
Posted
Wendy, I believe I have read that cases that have been left untreated for many years are the ones most likely to become cancerous. Using a steroid or immunosuppressant seems to make the difference. If your doctor felt it was cancer I'm sure there would have been more urgency placed on getting results back sooner. Maybe the test is to confirm it is in fact LS and not another dermatological issue.
I know it will be a long 8 weeks just the same. May sound hokey, but in the meantime try to remind yourself of all the positives in your life so far.