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New strange seizures

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Penguins73140
Penguins73140

I have had temporal lobe epilepsy associated with hippocampal sclerosis for a few years now, on keppra that has been working well since Christmas 2014. but have recently had 3 episodes where my head feels very hot and heavy and everything looks strange like I have to look at everything especially water or anything moving. I can hear what people are saying but it is as if I forget what they say just afterwards as I can't respond or speak apart from nod and shake my head lightly. The first time I couldn't get my hand to write in an exam and my most recent one I wanted to walk around and my legs felt heavy and achey when I wasn't standing. Normally after seizures I need 10-15 minutes to recover and not feel tired and don't remember the seizure, but after these I feel extremely tired like I could sleep on my feet, very dizzy and I rock side to side, and takes over 1 hour to feel better after a sleep. all the symptoms stay the whole time and I remember the episode. I wondered if this is a different type of seizure and if so what as I can't seem to find much information about it. Any news would be useful as they are scary and make me feel a nuisance as I can hear what's happening just something's not quite right and they are so time consuming!

thanks

penguins

0 likes, 9 replies

9 Replies

  • suku
    suku Penguins73140

    Posted

    No this isn't different what you are experiencing. When I have a fit it first starts with tingling then the tingling comes right up to my neck that's when I know I have no time to get to safety. After the fit right side becomes very heavy both the arm and the leg. It takes a good ten minutes to get back to normal. In that if I do not take clobazam I will most likely have another fit. I understand where you are coming from. I won't say I sympathise with as none of us want it. We want normality.

    If any of this information has helped you I am glad.

    • Penguins73140
      Penguins73140 suku

      Posted

      Thanks suku

      so what you're saying is it is just another form of partial seizure? That's very reassuring I worried something had changed or it was something other than a seizure. I know they come in lots of forms it's just sometime nice to be reassured by someone who also goes through a similar thing with epilepsy.

    • suku
      suku Penguins73140

      Posted

      I have tonic clonic seizures and partial lobe seizure. I have two types. Mine have improved over a period of time. By time I mean 38 years. I was diagnosed with epilepsy at the age of 2 years. I use to - to have lots of seizure per day mum says. I don't remember for obvious reasons. As I grew older and stress level of studies increased the seizures changed to just changed to one type but increased when I was stressed and that was frequent. Now nothing has changed. The frequency of the fits has definitely decreased a lot because I have stop taking stress. I have made my nature happy go lucky. I had to. I was a very serious person who had a bad temper but I had to let go of that all in order to improve my health.

      To improve your health change yourself. Be happy go lucky no stress no temper take one day at a time. If you can't do it just say to yourself I tried. That's what counts.

    • suku
      suku Penguins73140

      Posted

      Hi there. There are many forms of epilepsy. It also depends where the epilepsy is coming from. For example is it temporal lobe, frontal lobe, parietal lobe, occipital lobe. They all they different symptoms. Mine is temporal, frontal lobe and parietal lobe.

      Then there is absence seizure when you lose conciseness for only a second. Complex seizure which make you do repetitive movements or act in a funny way. Secondarily generalised which spread from one side of the brain to both sides. Generalised seizures affect both sides of the brain. Tonic seizure where a person's muscles become stiff. Atonic seizures where a person muscles become floppy. Myoclonic seizures where the muscles jerk. They are brief and happen in clusters. Tonic clonic seizures which I have where person loses conscious body goes stiff they convulsed breathing becomes a problematic. Clonic seizures are convulsive seizure.

      This are just a few. They are many more. We are not alone. So many suffer like us. Join epilepsy action. I didn't become a member. Instead I took help from them.

      They were very nice. They gave a year of seizure diary. In set of 4 month. I would advice you to do the same. Record all your seizure in a seizure diary. Also download their app. It's very useful. Get a medic alert band. Wear it every time you go out alone. You need to find out what triggers your fits. For me it is stress and not sleeping well.

      I hope this has helped you. Any information you need please do not hesitate to contact me

    • Penguins73140
      Penguins73140 suku

      Posted

      Thanks so much for your replies they make me feel that I don't need to worry as much about what happens just sometimes being at school with no one around me who has it I worry I am wasting time people's time when coming round from a seizure. I see no one else have them so don't know how long it takes others to recover so as soon as I feel even a tiny bit better I think I should try to go back to the activity then have another one and really I should slow down and give myself time to recover without worrying, everyone's really supportive sometimes I just need a slap to say don't worry just go with the flow and everyone's prepared to wait for you so don't think they aren't. I might try those tips you gave me. I know stress brings them on, not drinking enough water and tiredness just need to find ways to relax and slow down a bit

      kind regards

      penguins smile

    • suku
      suku Penguins73140

      Posted

      Hi if you don't mind me asking how old are you? You mentioned school which primary or secondary. It's just I can guide you according. I have been there know of the stress so can guide you provided I know which level I guiding.

      Please don't feel I am preying. If you don't want to write here I can give you my personal email that would be better I think.

    • Penguins73140
      Penguins73140 suku

      Posted

      16 - just doing GCSEs now I find I have more seizures when stressed so these days are interesting but I am getting the hang of revising without getting too many and keeping calm teachers are very supportive
    • suku
      suku Penguins73140

      Posted

      Okay so now listen how you should do your revision. Take one subject per day and study it to the fullest. So by doing ìt this way you won't be stressed and also you will take in all the information at a reasonable pace.

      Start revision extra early. Don't leave it last minute. People like you and me can't do things last minute because stress will get to us. We need time. When we have time and are relaxed our health ìs good.

      Also try taking breaks in between. It will help your concentration level. Eat healthy rather than junk food.

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