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Hi . Phew I am 1 year post PE. Was feeling really good until last week... Looking for some reassurances. I have pain/dull ache in my left breast going through to my back just under my shoulder blade. There all the time. My heart is racing but I think that might be because I am getting anxious. Not done anything to be muscle related . Any advice would be great.😊

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  • Posted

    I so.wtimes get chest pain. Im post almost a year too. Ive been off blood thinners since may. Are you still on blood thinners?
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    • Posted

      Hi Samantha. Yes still on Apixaban. Is your pain just on the left . Dull sort of ache. Especially when laying down. Been constant for about 5 days now.. thanks for replying. Hope all going well with you. :-)
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  • Posted

    Sometimes its on the left right or center. It does not matter what postion im in amd sometimes its dull or sharp but not to bad.
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  • Posted

    Hi Lizzie, interested to hear what tests you had to indicate PE had dissolved?  I am coming up to 6 months (start Nov) on Xarelto and then specialist going to another VQ scan (big radiation but I need to know) to see if clots have gone.  2 saddle clots in left lung.  He said the VQ is only one that will really tell him if there or not.

    ?Oddly I don't get much pain at all, although on exertion at times - stairs, up hill walking to work - my legs & back ache as though walked up a mountain. And frequently no energy at all & very unmotivated, which wasn't like that before.

    ?My sense is no-one knows all that much about what clots do/supposed to do and there's a lot of hope attached to it.  He also said that right sided heart issues cause clots.  It's all scary and vague, and why I have agreed to the massive radiation of VQ again soon.  I just want to know!

    ?I read all these constantly, makes me feel not so alone with this.

    Does your doctor have any explanation for this shoulder pain?  Maybe talking to an "expert" might help you - although as they don't know and can't see in there........ I feel for you, it's horrible not knowing.

    Best wishes

    ?

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    • Posted

      Hi Elizabeth.😊 I feel for you too. Yes it is very scary. I have not had any follow up since September 2016.!!!Was asked to go for blood test last week. That's it . Still on Apixaban. What is VQ scan. I originally had the scan with dye which showed up multiple bilateral clots and ventricular strain. Anxiety worst symptom to deal with. 😌💐

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  • Posted

    Lizzie the VQ scan uses radioactive material to examine airflow and blood flow in lungs.  Its painless.

    ​He said the contrast CT is used for acute initially but the VQ is best for follow ups.

    ​Hope you have managed some relief now.  Look up everything you can on the net but be discerning.  Definitely be discerning what you take on board.

    Best wishes

     

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    • Posted

      Thanks that is really interesting. Was unable to get appointment to see doctor. Decided to wait and see if pain got better. Luckily it has. So hoping it was just a one off and won't reoccur.This forum is,so helpful. Hope all is going well for you Elizabeth. take care. xx💐

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