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New Symptoms 2 Years Post Op?

Posted , 6 users are following.

SuzinTN
SuzinTN

 My daughter is 15 and had decompression surgery in December 2015. Her MRI at one year was fine. In the last few months she gets dizzy walking (not one for standing up) and blurred vision. She’s never had these before. We were blessed that her only symptoms prior to surgery for her headaches. She goes for another MRI in February.  What could be causing this?  Anyone else?

0 likes, 4 replies

4 Replies

  • Apple62
    Apple62 SuzinTN

    Posted

    It’s the Chiari.  Sometimes MRI and Ct will not pick up what is going on.  I had surgery in 2014.  I think I have cervical instability and I can’t sit up for very long.  I just about pass out.  Im still walking but not well.  The spine nerves affect just about every part of your body.  My teeth have pain in them.  Neurologist and neurosurgeon don’t always have the answers.  I’ve tried gabapentin, lyrica, bunches of muscle relaxers, opioids and even morphine.  Nothing helps.  Gone to PT, needling, massage, acupuncture and injections.  I spent thousands of dollars and it’s a money making business and no relief.  Not trying to discourage you just giving u the truth.  Bottom line surgery is not a fix.  I have slowly gotten worse. I also have throat pain.  Sorry to dump all this.  I could sugarcoat it but the only thing u can do is follow up with neurosurgeon.  
    • cakal76334
      cakal76334 Apple62

      Posted

      When have you been operated?

      Did you had syrinx? Did they opened your dura and put a patch when you were operated?

      Do you have any other issues besides your chiari?

  • mesilim
    mesilim SuzinTN

    Posted

    Hi Dear

    I have all those symptoms all my life because of my migrain

    I always confuse if the symptoms are from chiari or migrain

    After 50 years I know now which is which

    Take care

  • b2wc97455
    b2wc97455 SuzinTN

    Posted

    Hi there,

    I am so sorry to hear about your daughter...each person is different - I have a successful decompression and free of drugs or pain..my suggestion would be taking your daughter and have another check up - or ask the neurologist to provide LP (Lumbered puncture) its help some patients post decompression..no medicine will help ..best try to do Tai Chi or Yoga (even though she might be struggling as well)

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