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I'm new to the group but was very active in it 15 years ago. I had left HFS for 17 years in my 40's and 50's. I had a MVD of the 7th cranial nerve at UPMC in Pittsburg in 2001 with very good results and no complications. I began having a raspy voice about 5 years ago and saw multiple doctors who didn't know the cause. Recently my voice has become very weak and it's hard for me to speak. I saw a voice specialist, who did a scope of my voice box. It showed the left side of it is no longer functioning. An MRI was immediately ordered and showed a mass in the base of my brain, where the MVD had been performed. A consult with a neurologist was suggested and the one I saw was pretty sure the mass was granulation, or scar tissue, around the surgery site, which could be the cause of the disfunction of my voice box on that side. It may or may not get larger and cause other nerve disfunctions. But the only thing I could do is to have another MVD to remove the scar tissue. I thought I was home free after 10-15 years without symptoms but it looks like I'm stuck with this monster for the rest of my life.
i would be glad to answer any questions about HFS, as I've lived with it for many years.
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